The ABCs of Advocacy for Children With Special Needs (page 2)
Parents, teachers and children working together as partners will enable children with special needs to access the appropriate services. This article aims to advance knowledge of the procedures and principles of the law and its recent changes and presents advocacy strategies to insure that all children receive a free, appropriate education.
Know the Federal Law
The IDEA (Individuals with Disabilities Education Act) passed in 1997 insures that all children with disabilities receive a free, appropriate public education. The law provides for:
- An appropriate evaluation by the school district
- An Individual Education Plan to be implemented in the least restrictive environment
- Parent participation in decision making due process safeguards.
In 2004 Congress renewed the IDEA by passing IDEA04 , to take effect by July 2005. A main goal of the new law is to reduce paperwork requirements, thereby enabling special education teachers to spend more time with students. States have been directed to minimize the number of rules and regulations they require of local school districts and to identify any state-imposed rule, regulation or policy that is not required by federal regulations.
The first step for parents: If you suspect your child has a disability, you should
- Meet with teacher and/or principal and discuss ways to assist the child
- Request in writing from the appropriate committee listed below that your child be evaluated to determine what services would be appropriate. Be sure to keep copies of all of your correspondence and notes from all meetings and phone calls.
EI: Early Intervention (birth to age 3)
CPSE: Committee on Preschool Special Education (3ס years old)
CSE: Committee on Special Education (5–21 years of age)
Setting the process in motion
- Individual evaluations are provided by districts free of charge
- Written consent from parents is needed.
- Evaluation results help determine if your child has a specific learning disability or other classified weakness so that special education services or programs can be provided.
What does a comprehensive evaluation consist of?
- Developmental history—birth, medical, family, social
- Classroom observation
- Other assessments—language, occupational therapy, physical therapy
- Psychological evaluation—intellectual functioning, memory, planning, organization, attention, visual vs. auditory skills, emotional functioning
- Educational evaluation – all academic areas, process-oriented measures that review underlying skills and abilities that may affect functional school performance
Note: IDEA04 no longer requires the district to substantiate a discrepancy between IQ and achievement as part of the learning disability identification process. Schools are encouraged to use approaches that use targeted, instructionally-relevant approaches that will assist children early and possibly avoid the need for special education.
Next steps–putting the evaluation results in place
Results of the evaluation must be provided to parents via a meeting with the evaluators, a written report that documents the test results and test scores, and a meeting with the Committee at which time all the scores and tests are explained and classification and necessary services are recommended.
Note: IDEA04 encourages the use of alternative ways of meeting, such as conference calls. The new law allows changes to the IEP without the need for the entire IEP team to reconvene for a formal meeting.
Eligibility for services
In order to be eligible for an Individual Education Plan (IEP) a child must have a disability that affects his/her ability to learn. A child must be classified in one of the following categories of disability: Autism, blindness, deafness, emotional disturbance, hearing impairment, mental retardation, multiple disabilities, orthopedic disabilities, other health impa irments, specific learning, speech/language, traumatic brain injury, or visual impairment.
Note: IDEA04 requires that states develop and implement policies that would prevent school personnel from requiring children to take prescription medication, such as those commonly prescribed for children with Attention-Deficit/Hyperacitivity Disorder (ADHD), as a condition for attending school, undergoing an evaluation for special services or receiving special services.
When appropriate, a Section 504 Accommodations Plan is suggested instead of an IEP. Section 504 is a disability law separate from IDEA and requires all agencies receiving federal funds to allow children access to educational programs and services. Any child not entitled to services through IDEA and an IEP must be considered for educational modifications under Section 504.
Individual Education Program (IEP)
The IEP must take into account the results of the evaluation, including the child's strengths and weaknesses, results of state or district wide tests, the unique needs and/or special equipment, long and short-term goals and the least restrictive environment.
Note: IDEA04 requires that short-term goals be specified only for those children with significant cognitive disabilities.
The IEP must be reviewed at least once a year. Every 3–5 years a new evaluation must be completed to determine eligibility and classification.
Note: IDEA04 authorizes a new pilot program that will allow up to 15 states to offer parents the option of a multi-year IEP, not to exceed 3 years.
The effect of the No Child Left Behind (NCLB) and IDEA04
All children with disabilities are included in the annual statewide assessments required by NCLB. IDEA04 allows states and school districts to use funds earmarked for special education to assist students who have not been found eligible for special education but who may need additional assistance to succeed in general education. IDEA04 also requires all special education teachers to be certified in special education.
What if parents don't agree with the school? Options to resolve disputes
- Mediation—Parent and school district meet with neutral third party who tries to help them come to an agreement.
- Due process hearing—Parent and school district present written and oral testimony of disputed issue to a judge.
Enhancing advocacy skills of parents
Parents must know when to advocate for their child and when not to step in. At times it may be preferable to let a child learn from failure. For example, a child who forgets to complete his homework, may be able to discuss and arrange a make-up assignment with the teacher on his own. However a child who forgets assignments repeatedly may need parental intervention to determine the source of the problem and ways to rectify it.
Children should be assured that their parents are their allies. Parents should openly communicate to their children that they are advocating for their educational needs.
Parents should ask, listen and answer questions about their child's concerns during this process, and create an atmosphere of respect and affection.
Parents may need to select teachers and supportive assistance agents through face-to-face meetings to discuss shared goals. It is important to document dates, long and short- term goals and other points made during the meeting.
Establish and document at least a tentative time frame for goals to be achieved, make specific plans for follow-up meetings, and obtain contact information.
Local and national advocacygroups should be supported when possible.
Reprinted with the permission of the NYU Child Study Center. © NYU Child Study Center.