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NICHCY Connections...to Information in Spanish on Disability Conditions

Source: National Dissemination Center for Children With Disabilities
Topics: Special Needs, more...

AD/HD (Attention-Deficit/Hyperactivity Disorder)

Asperger Syndrome

Asthma / Allergies

  • Go to the authorities on the subject.
    www.aaaai.org/patients/resources/spanish.stm
    Who better than the American Academy of Allergy, Asthma, and Immunology, where you'll find tons of information in Spanish, including children's storybooks, easy-to-read fact sheets, and tip brochures for preventing and treating asthma and allergies.
  • More info about asthma.
    www.kidshealth.org/parent/en_espanol/index.html
    Go to the KidsHealth site at the link above, and find the online briefs Todo Sobre las Alergias (All about Allergies) and Control del Asma (Managing Asthma).

Autism

Blindness / Visual Impairments

  • Visit the National Eye Institute (NEI).
    www.nei.nih.gov/health/espanol/index.asp
    Tthe NEI was established by Congress in 1968. It conducts and supports research that helps prevent and treat eye diseases and other disorders of vision. Extensive information is available in Spanish on low vision, cataracts, macular degeneration, visual issues associated with diabetes, and glaucoma.
  • Lots of info at NOAH!
    www.noah-health.org/es/eye/
    NOAH is the New York Online Access to Health. Its Web site in Spanish connects you to Spanish language resources from many different sources on visual impairment, including: basic information about the eye, a glossary of terms, low vision fact sheets, eye disorders, diagnosis, and treatments.
  • Go here for a large list of eye-related issues.
    www.nlm.nih.gov/medlineplus/spanish/eyesandvision.html
    Find out about the eye's anatomy and conditions such as astigmatism, cancer, problems with vision, including blindness, macular degeneration, and much more.
  • The Blind Children's Center.
    www.blindchildrenscenter.org
    Information in Spanish can be ordered from the Blind Children's Center, including: the 12-page Heart to Heart (where parents of children who are blind and partially sighted talk about their feelings); the 28-page Let's Eat: Feeding a child with a Visual Impairment
    (how to teach feeding skills to children with visual impairments); the 12-page Move with Me (a parent's guide to movement development for babies who are visually impaired); the 11-page Talk to Me (a language guide for parents of children who are visually impaired) and the 15-page sequel Talk to Me II;. and the 28-page Selecting a Program (a guide for parents of infants and preschoolers with visual impairments). Access an order form at: www.blindchildrenscenter.org/pubs.htm
  • For grandparents of children with visual impairments.
    www.spedex.com/napvi/index_sp.htm
    National Association for Parents of Children with Visual Impairments (NAPVI) offers a mirror home page in Spanish that leads back to their English site. The Spanish publication In Celebration of Grandparenting (Celebrando El Ser Abuelos) is available to help grandparents of children with visual impairments or blindness better understand how they can engage constructively in direct and indirect support of their loved ones dealing with visual impairment. Find out more about this resource and order at: www.spedex.com/napvi/order.html.

Childhood Disintegrative Disorder

  • Criteria for CDD in Spanish.
    http://biblioteca.consultapsi.com/DSM/Dsmdes.htm
    This link will take you to the DSM criteria in Spanish (courtesy of a site in Argentina) for all five of the disorders under the umbrella of PDD.
  • Trastorno Desintegrativo de la Niñez.
    www.autismo.com/scripts/articulo/smuestra.idc?n=nichcy
    This is a translation of NICHCY's briefing paper on PDD. Scroll down and find the description of childhood disintegration disorder and the DSM-IV criteria for it. The rest of the paper will be helpful as well, as the treatments for CDD and PDD are similar.
  • A brief description in Spanish.
    www.uam.es/personal_pdi/psicologia/adarraga/studs/
    autismo/trastorno%20desintegrativo.htm
    The link above will take you to a short description of CDD in Spanish. Then click on the "Forward" link at the bottom, and go to a comparison of CDD with other disorders (Comparación con Otros Trastornos).
  • The Spanish version of "When your child is diagnosed with an autism spectrum disorder."
    www.iidc.indiana.edu/irca/fspanish.html
    "Cuando su niño/niña es diagnosticado con alguno de los desórdenes en la gama del autismo" is the Spanish title of this publication from the Indiana Resource Center for Autism.

Deafness / Hearing Impairments

  • An introduction to hearing loss, including deafness, from NICHCY.
    www.nichcy.org/pubs/spanish/fs3stxt.htm
    For a quick read on hearing impairments, including deafness, and a list of helpful resources and organizations, try our fact sheet in Spanish.
  • Heard of the EHDI, the Early Hearing Detection and Intervention program?
    www.cdc.gov/ncbddd/defaultspan.htm
    The EHDI program is intended to identify children with hearing loss and intervene early to prevent later problems with communication. Universal newborn hearing screening is soooooooo important! Learn about EHDI at the National Center on Birth Defects and Developmental Disabilities (NCBDDD), within the CDC (Centers for Disease Control). Under NCBDDD's "Temas de Salud A-Z" option of "Deficiencias del Desarrollo," you'll find the publication Hearing Loss in Children (Audición Inadecuada en los Niños).
  • Find your state's EHDI program.
    www.infanthearing.org/states/index.html
    Working from a map of the U.S., click on your state and find the contact information for the person in your state that coordinates the early hearing detection and intervention program. Also find out what hospitals in the state report screening for hearing loss at least 90% of the birth/admissions at the hospital.
  • Access a treasure trove of information at the National Institute on Deafness and Other Communication Disorders (NIDCD).
    www.nidcd.nih.gov/health/spanish/index.asp
    Find out about an incredibly wide range of subjects on hearing: aphasia, screening an infant's hearing, hearing aids, cochlear implants, communication options, tinnitus, ear infections, captioning, and much more.
  • Basic introductory materials about hearing and language development, hearing tests, and treatments for hearing loss.
    www.asha.org
    ASHA, the American Speech-Language-Hearing Association, offers Spanish versions of several of its publications, including:
    • Qué Tal Habla y Oye Su Niño? (How Well Does Your Child Hear and Talk?) gives parents an overview of typical development of hearing and speech skills, and where to get help for suspected problems or delays. Read online at: www.asha.org/public/speech/development/child_hear_talk.htm
    • Informaciones del Habla y Audición (para Niños) (Children's Speech and Hearing Packet), which includes the following publications: La Identificación Temprana de los Retrasos y Desórdenes del Habla y el Lenguaje; Qué es una Evaluación Audiológica?; Actividades Para Estimular el Desarrollo del Habla y el Lenguaje; Preguntas y Repuestas Sobre el Lenguaje Infantil; Los Problemas de Articulación; Otitis Media La Audición, y el Desarrollo del Lenguaje; Qué Tal Habla y Oye Su Niño?; Tratamiento Para Los Trastornos de Audición; Tratamiento Para Los Trastornos del Habla y Lenguaje
    ASHA also offers guidance on children and bilingualism, on serving a multicultural population, and on what's normal and what's not when an individual is learning English as a second language. These latter publications are available in English only.
  • Need information on deaf-blindness?
    www.tr.wou.edu/dblink
    Contact DB-Link, the National Information Clearinghouse on Children Who Are Deaf-Blind (El Centro de Información Nacional sobre Niños que son Sordos y Ciegos), phone, 1.800.438.9376, and email, dblink@tr.wou.edu. To find DB-Link's publications in Spanish, visit the home page and select "DB-Link publications." This will take you the publications page; next to each publication, there's the Spanish version!
  • More info on deaf-blindess, from the Nevada Dual Sensory Impairment Project.
    www.unr.edu/educ/ndsip/index.html
    Starting from the home page noted above, select "Fact Sheets." This will lead you too all project publications on deaf-blindness in English translated into Spanish.

Down Syndrome

  • National Down Syndrome Society (NDSS).
    www.ndss.org
    For an array of publications on Down syndrome and issues related to the disability, visit the NDSS home page and click on "Información en Español."
  • A guide for parents from a commercial publisher.
    www.woodbinehouse.com
    Woodbine House makes available a Spanish translation of its parent's guide on Down syndrome, called Bébes con Síndrome de Down: Guía para Padres. Contact Woodbine House via the Web site address above, or through their toll-free number: 1.800.843.7323.

Health Information

  • For government and nonprofit health and human services information on the Internet.
    www.healthfinder.gov/
    Healthfinder connects you with a range of health-related resources. The same service is available in Spanish, at: www.healthfinder.gov/espanol/
  • Su Familia: The National Hispanic Family Health Helpline.
    www.hispanichealth.org/
    Call 1.866.783.2645 and connect to free, reliable, and confidential health information in Spanish and English. Give your zip code and be referred to one of over 12,000 local health providers, including community and migrant health centers. Fact sheets in Spanish are available on these health topics: Cancer, Cancer Treatment, Lung Cancer, Cervical Cancer, Prostate Cancer, Colorectal Cancer, Cardiovascular Disease, and Diabetes. From the home page, under "Resources," click on "Health Facts" and you'll see "Información en español ."
  • Information about health topics of all kinds.
    http://medlineplus.gov/spanish
    This site is a service of the U.S. National Library of Medicine and offers everything from an online medical encyclopedia to interactive tutorials for patients.
  • More information about health topics of all kinds.
    www.familydoctor.org
    The American Academy of Family Physicians provides this site of "health information for the whole family." For Spanish language materials, go to: www.familydoctor.org/spanish.xml
  • NOAH: New York Online Access to Health.
    www.noah-health.org/
    NOAH offers visitors online access to full-text health information on syndromes and rare disorders. To find this information in Spanish, select (click on) "Temas de salud" on the home page. You'll find info on health conditions (e.g., asthma and allergies, blood disorders, cancer, diabetes, digestive illnesses, hearing and balance, eyes and vision) and health issues (e.g., alternative medicine, diagnostic tests and interventions).
  • Birth defects and genetic conditions.
    www.nacersano.org
    Nacer Sano is the Spanish site of the March of Dimes. In their online Biblioteca de Salud (Health Library), you'll find information in Spanish on a wide range of birth defects and genetic disorders, including: sickle cell anemia, chromosomal anomalies, heart defects, Tay-Sachs, spina bifida, cerebral palsy, hearing loss, Down syndrome, Marfan syndrome, and Fragile X syndrome.
  • Lookin' for information about respiratory illnesses and problems with the immune system?
    www.njc.org/spanish/main.html
    Visit the National Jewish Medical and Research Center. It's the only medical center in the U.S. dedicated entirely to the investigation and treatment of respiratory illnesses. In addition to information on asthma and allergies, you'll find materials in Spanish on AIDS, cancer, tuberculosis, emphysema, and illnesses of the immune system, such as lupus.
  • What does NIH (National Institutes of Health) have to say in Spanish?
    http://salud.nih.gov
    A lot! Go to the address above, click on "publicaciones," and view "all" by either topic or the institute within NIH that produced it.
  • Lookin' for tips on how to prepare your child for a trip to the doctor or for a hospital stay?
    www.kidshealth.org/parent/en_espanol/index.html
    Go to the KidsHealth site, at the link above.
  • Interested in alternative medicine?
    www.kidshealth.org/parent/en_espanol/index.html
    KidsHealth offers a description in Spanish of the various types of alternative medicine practices in its publication La Medicina Alternativa y su Hijo (Alternative Medicine and Your Child).

Learning Disabilities

  • The amazing LDOnline site.
    http://www.ldonline.org/
    The link above will take you to the LDOnline page in English. On the menu bar on the right, scroll down and select (click on) "Información en Español."
  • Dyslexia is a learning disability.
    http://interdys.org
    The International Dyslexia Association (IDA) offers seven publications in Spanish on dyslexia, a learning disability that affects reading. To find these, select "Información en Español" from the home page noted above.
  • Schwab Learning focuses on learning disabilities.
    www.schwablearning.org/
    A mirror site of Schwab's information on LD is provided in Spanish. Scroll down to the bottom of the home page and select (click on ) "Español."

Mental Health / Mental Illness

  • American Academy for Child and Adolescent Psychiatry.
    www.aacap.org
    When you're on the above home page, scroll down to the bottom and on the menu bar select "En Español." This will take you to the American Academy's information fact sheets on emotional disorders (not copyrighted) in English and Spanish.
  • NAMI- National Alliance for the Mentally Ill.
    www.nami.org
    NAMI's Spanish publications can be accessed by going to the above link. On the right menu bar, select (click on) "NAMI en Español." You'll find information fact sheets and an (800) national information line about programs, chapters, and support groups.
  • Mentesana.com or healthinmind.com.
    www.mentesana.com/
    The HealthinMind and Mentesana sites are organized around the diagnostic categories of the "Diagnostic and Statistical Manual of Mental Disorders" (fourth edition, DSM-IV). From the home page, select "Español." You'll find: Information in Spanish and in English on different emotional disorders, as well as book and links to other organizations.
  • Servicios de Salud Mental--Accesando la red de intercambio de conocimiento.
    www.mentalhealth.org
    The above link will take you to SAMHSA's National Mental Health Information Center. To access materials in Spanish, you will need to scroll down on the left menu bar to "Navigation" box and select (click on) "Español." This will lead you to publications on mental health and child rearing and to an (800) national information line.
  • Spanish fact sheets on several mental disorders.
    www.nimh.nih.gov/publicat/spanishpubs.cfm
    The National Institute of Mental Health (NIMH) offers a variety of publications in Spanish on emotional disturbances, including depression, schizophrenia, anxiety disorders, panic disorder, AD/HD, obsessive-compulsive disorder, post-traumatic stress disorder, and bipolar disorder.
  • Information about mental health and behavior disorders.
    www.nlm.nih.gov/medlineplus/spanish/mentalhealthandbehavior.html
    Medline offers information in Spanish about AD/HD, eating disorders, and behavior problems, as well as fact sheets about anxiety, depression, obsessive-compulsive disorder, panic, phobias, Asperger's syndrome, and bipolar disorder.
  • Information on depression, schizophrenia, and bipolar.
    www.nmha.org/index.cfm
    The National Mental Health Association (NMHA) offers for sale several publications in Spanish, including: What is Depression?; Schizophrenia: What You Need to Know; and Bipolar Disorder: What You Need to Know.

Rare Syndromes

  • NOAH: New York Online Access to Health.
    www.noah-health.org/
    NOAH offers visitors online access to full-text health information on syndromes and rare disorders. To find this information in Spanish, select (click on) "Temas de salud" on the home page.
  • Genetics, birth defects, and the March of Dimes.
    www.modimes.org/
    On the March of Dimes home page, scroll to the bottom of the page and click on "Español." This will lead you to information fact sheets in Spanish on birth defects and genetics and to the Resource Center that provides information and referral services to the public.
  • National Institute of Neurological Disorders and Stroke (NINDS).
    www.ninds.nih.gov
    National Institute of Neurological Disorders and Stroke (NINDS) is part of the National Institutes of Health (NIH). To find their Spanish materials, visit the home page link provided above. On the top menu bar, select (click on) "Disorders" and then "Publicaciones en español." You'll find publications on such disorders as Ataxia, Cerebral Palsy, Hydrocephaly, and Spina Bifida.
  • Medline Plus in Spanish offers descriptions of many rare syndromes.
    www.nlm.nih.gov/medlineplus/spanish/geneticsbirthdefects.html
     At Medline, you'll find briefs on such general topics as Evaluation and Genetic Tests (Asesoramiento y Pruebas Genéticas) and a glossary of genetics terms. There are briefs on many specific syndromes, including: Charcot-Marie-Tooth, Tay-Sachs, Huntington, Wilson, Prader-Willi, Marfan, Turner, and Tourette.
  • Organizations on rare syndromes/disorders outside the U.S.
    The three organizations above are all within the continental United States. Here are some links to organizations outside the U.S. offering information on rare syndromes or disorders in Spanish.

Rett Syndrome

Special Health Care Needs

  • Family Voices speaks for children with special health care needs.
    www.familyvoices.org/
    Family Voices is a national coalition concerned with the special health care needs of children. To find information in Spanish on managed health care of children with special health needs, look in Family Voice's catalog at: www.familyvoices.org/catalog.htm.

Speech and Language Impairments

  • Click the link below for a rich list of Spanish publications on cleft palate.
    www.cleftline.org/SPANISH/Publications/
    Visit the Cleft Palate Foundation for many online materials in Spanish for parents.
  • Basic introductory materials about speech and language development.
    www.asha.org
    ASHA, the American Speech-Language-Hearing Association, offers Spanish versions of several of its publications, including:
    • Qué Tal Habla y Oye Su Niño? (How Well Does Your Child Hear and Talk?) gives parents an overview of typical development of hearing and speech skills, and where to get help for suspected problems or delays. Read online at: www.asha.org/public/speech/development/child_hear_talk.htm
    • Informaciones del Habla y Audición (para Niños) (Children's Speech and Hearing Packet), which includes the following publications: La Identificación Temprana de los Retrasos y Desórdenes del Habla y el Lenguaje; Qué es una Evaluación Audiológica?; Actividades Para Estimular el Desarrollo del Habla y el Lenguaje; Preguntas y Repuestas Sobre el Lenguaje Infantil; Los Problemas de Articulación; Otitis Media La Audición, y el Desarrollo del Lenguaje; Qué Tal Habla y Oye Su Niño?; Tratamiento Para Los Trastornos de Audición; Tratamiento Para Los Trastornos del Habla y Lenguaje
    ASHA also offers guidance on children and bilingualism, on serving a multicultural population, and on what's normal and what's not when an individual is learning English as a second language. These latter publications are available in English only.

What about Other Conditions?

A few quick links...

Reprinted with the permission of the National Dissemination Center.

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