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Never Give Up! Don’t Let Statistics Rob Your Hope and Joy
When a child is first diagnosed with a medical condition, especially a life-threatening one, the first question many ...
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When a Child is Diagnosed with Cancer: How Life Changes
Life does not prepare parents for a diagnosis of cancer in children. Emotionally, the leap from being a parent of a ...
Source: Cure Search
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Developmental Trends: Chronic Health Conditions in Children and Adolescents
Infancy (Birth-2)What You Might Observe: Irregular sleep and wake cycles Trouble being soothed Digestive ...
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Teens with Cancer are Different
Ask any teen and they will emphatically explain that teens are not “kids." And that's true.Adolescents ...
Source: Cure Search
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Effects of Illness on Preschool Children
Infants learn mainly through their senses and by interacting with both objects and other human beings. Familiar objects ...
Source: Cure Search
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The NICU: Parents Talk (Video)
When your baby is in the neonatal intensive care unit (NICU), it can be a stressful time. Life may seem like it's ...
Source: The Nemours Foundation
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Cancer: Jen's Story (Video)
Jen, 16, looks forward to living a normal life when her treatment for non-Hodgkin's lymphoma is over. She shares her ...
Source: The Nemours Foundation
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Beta Thalassemia
ThalassemiasThalassemias are a group of blood disorders that affect the way the body makes hemoglobin, a protein found ...
Source: The Nemours Foundation
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When a Kid Has a Long-Term Illness: How to Deal with School
Parents, you know the old rule: if kids are healthy, they should attend school, on time. If they are sick, keep them ...
Source: Education.com
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Giving ‘Till It Hurts!: Parenting a Child with Special Health Needs
Let's start with Janice, a typical mom with special concerns:Janice sat on the front stoop with her head in hands. The ...
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Physical or Health Disabilities Defined
The federal government considers physical disabilities and health disabilities as separate special education ...
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Duchenne Muscular Dystrophy
DefinitionDuchenne muscular dystrophy is an inherited disorder that involves rapidly worsening muscle ...
Source: Health Finder (U.S. Department of Health and Human Services)
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U.S, Japanese Scientists Test Treatmentfor Muscular Dystrophy: Pilot StudyShows "Exon Skipping" DNA Therapy Effective in Dogs
Washington — Scientists from the United States and Japan successfully tested a treatment for Duchenne muscular ...
Source: U.S. State Department
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Newborn Screening for Duchenne Muscular Dystrophy Workgroup: Lay Report
Newborn screening is a public health program aimed at early identification of babies with conditions that will benefit ...
Additional Content
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1.
Is My Child Too Sick to Go to School?
I'm usually a pretty good judge of when my kids are too sick to go to school or daycare, but other times — like when...
Source: The Nemours Foundation -
2.
Cancer: Rose's Story (Video)
Rose, 8, talks about her experiences as a cancer survivor, and her dreams for the future.
Source: The Nemours Foundation -
3.
Neurofibromatosis
About Neurofibromatosis Neurofibromatosis (NF) is a neurocutaneous syndrome that can affect many parts of the body,...
Source: The Nemours Foundation -
4.
The Sweat Test
Overview The sweat test has been the "gold standard" for diagnosing cystic fibrosis (CF) for more than 40 years....
Source: Cystic Fibrosis Foundation -
5.
Eating Hints for Cancer Patients: Before, During, and After Treatment
Recipes Banana Milkshake Fortified Milk High-Protein Milkshake Peanut Butter Snack Spread Fruit and Cream ...
Source: National Cancer Institute
