California State Resources (continued)

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
Web: www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

Robert Stigile, President
National Federation of the Blind of California
5530 Corbin Avenue, Suite 313
Tarzana, CA 91356
(818) 342-6524; (877) 558-6524
E-mail: nfbcal@sbcglobal.net

LaDonna Ringering, Ph.D., Director
The Center for the Partially Sighted
12301 Wilshire Boulevard, Suite 600
Los Angeles, CA 90025
(310) 458-3501; (800) 481-EYES (3937)
E-mail: info@low-vision.org
Web: www.low-vision.org

Cerebral Palsy
Doug Bergman, CEO
United Cerebral Palsy of Greater Sacramento
191 Lathrop Way, Suite N
Sacramento, CA 95815
(916) 565-7700
E-mail: ucp@ucpsacto.org
Web: www.ucpsacto.org

Down Syndrome
Kristie Lerma, President
Down Syndrome Association of San Diego
c/o The Exceptional Family Resource Center
9245 Sky Park Court, Suite 130
San Diego, CA 92123
(619) 276-4494
E-mail: dsasd@projects.sdsu.edu
Web: http://dsasdonline.org/

Epilepsy
Kathy D. West, Executive Director
Epilepsy Foundation of San Diego County
2055 El Cajon Blvd
San Diego, CA 92104
(619) 296-0161
E-mail: info@epilepsysandiego.org
Web: www.epilepsysandiego.org

(serving L.A., Orange, Ventura & San Bernardino Counties)
Susan Pietsch-Escueta, Executive Director
Epilepsy Foundation of Greater Los Angeles
5777 W. Century Boulevard, Suite 820
Los Angeles, CA 90045
(310) 670-2870; (800) 564-0445
E-mail: pietsch@epilepsy-socalif.org
E-mail: sos@epilepsy-socalif.org
Web: www.epilepsy-socalif.org

Neva Hirschkorn, Executive Director
Epilepsy Foundation of Northern California
5700 Stoneridge Mall Road, Suite 295
Pleasanton, CA 94588
(925) 224-7760; (800) 632-3532
E-mail: nevah@epilepsynorcal.org
Web: www.epilepsynorcal.org

Intellectual and Developmental Disabilities
Tony Anderson, Executive Director
The Arc of California
1225 Eighth Street, Suite 210
Sacramento, CA 95814
(916) 552-6619
E-mail: tanderson@arccalifornia.org
Web: www.arccalifornia.org

Learning Disabilities
Learning Disabilities Association of California
6060 Sunrise Vista Drive, Suite 1999
Citrus Heights, CA 95610
(916) 725-7881; (866) 532-6322
E-mail: office@ldaca.org
Web: www.LDACA.org

Mental Health
Rusty Selix, Executive Director
Mental Health Association in California
1127 11th Street, Suite 925
Sacramento, CA 95814
(916) 557-1167
E-mail: rselix@mhac.org
Web: www.mhac.org

Oscar Wright, Chief Executive Officer
United Advocates for Children and Families
2035 Hurley Way, Suite 290
Sacramento, CA 95825
(916) 643-1530, ext. 106; (866) 643-1530
E-mail: information@uacc4families.org
Web: www.uacc4families.org

Grace McAndrews, Executive Director
NAMI California
1010 Hurley Way, Suite 195
Sacramento, CA 95825
(916) 567-0163
E-mail: support@namicalifornia.org
Web: www.NAMICalifornia.org

Speech and Hearing
Robert Powell, J.D.
California Speech-Language-Hearing Association (CSHA)
(representing speech-language pathologists and audiologists)
825 University Avenue
Sacramento, CA 95825-6724
(916) 921-1568
E-mail: CSHA@CSHA.org
Web: www.CSHA.org

Spina Bifida
Laurel Moorhead, Treasurer
Spina Bifida Association of Greater San Diego
P.O. Box 232272
San Diego, CA 92193-2272
(619) 491-9018
E-mail: sbaofgsd@hotmail.com

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Susan Henderson, Managing Director
Disability Rights Education and Defense Fund, Inc. (DREDF)
2212 6th Street
Berkeley, CA 94710
(510) 644-2555; (800) 348-4232
E-mail: dredf@dredf.org
Web: www.dredf.org

Bobbie Coulbourne, Project Director
Exceptional Parents Unlimited
4440 N. 1st Street
Fresno, CA 93726
(559) 229-2000
E-mail: bcoulbourne@exceptionalparents.org
Web: www.exceptionalparents.org

Nora Thompson, Executive Director
MATRIX, A Parent Network and Resource Center
94 Galli Drive, Suite C
Novato, CA 94949
(415) 884-3535; (800) 578-2592
E-mail: info@matrixparents.org
Web: www.matrixparents.org

Mary Ellen Peterson, Chief Executive Officer
Parents Helping Parents of Santa Clara
3041 Olcott Street
Santa Clara, CA 95054-3222
(408) 727-5775; (408) 748-8339 (TTY)
E-mail: info@php.com
Web: www.php.com

Kat Lowrance, Executive Director
Rowell Family Empowerment of Northern California, Inc.
3830 Rancho Road
Redding, CA 96002
(530) 226-5129
E-mail: sklowrance@aol.com
Web: www.rfenc.org