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Iowa State Disability Resources (continued)

Source: National Dissemination Center for Children With Disabilities
Topics: Iowa

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
E-mail: mail@add.org
Web: www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

Brain Injury
Geoffrey Lauer, Executive Director
Brain Injury Association of Iowa
2101 Kimball Avenue, LL7
Waterloo, IA 50702
(319) 272-2312; (800) 475-4442
E-mail: glauer@biaia.org
Web: www.biaia.org

Cerebral Palsy
Brigitte Van Nice, Director
The Arc of Cedar Valley
760 Ansborough Avenue
P.O. Box 4090
Waterloo, IA 50704
(319) 232-0437
E-mail: arccv@episervice.org
Web: www.cedarnet.org/arccv

Epilepsy
Victor Verni, Executive Director
Epilepsy Foundation North/Central Illinois, Iowa & Nebraska
321 W. State Street Suite 208
Rockford, IL 61101-1119
(815) 964-2689; (800) 221-2689
E-mail: efncil@efncil.org
Web: www.epilepsyfoundation.org/ncillinois/

Intellectual and Developmental Disabilities
Brigitte Van Nice, Director
The Arc of Cedar Valley
760 Ansborough Avenue
P.O. Box 4090
Waterloo, IA 50704
(319) 232-0437
E-mail: arccv@episervice.org
Web: www.cedarnet.org/arccv

Casey Westhoff, Executive Director
The Arc of Iowa
P.O. Box 1096
Cedar Rapids, IA 52406
(515) 210-6686; (800) 362-2927
E-mail: arcia@arceci.org
Web: http://thearcofiowa.org

Learning Disabilities
Kathy Specketer, State Coordinator
Learning Disabilities Association of Iowa
321 E. Sixth Street
Des Moines, IA 50309
(515) 280-8558; (888) 690-5324
E-mail: kathylda@askresource.org
Web: www.lda-ia.org

Mental Health
Lori Reynolds, Executive Director
Iowa Federation of Families for Children's Mental Health
106 S. Booth
Anamosa, IA 52205
(319) 462-2187; (888) 400-6302
E-mail: lori@iffcmh.org
Web: www.iffcmh.org

Margaret Stout, Executive Director
Jacqueline Elfmann, Visions for Tomorrow State Coordinator
NAMI IOWA
5911 Meredith Drive, Suite E
Des Moines, IA 50322-1903
(515) 254-0417; (800) 417-0417
E-mail: namiiowa@mchsi.com
E-mail: jkelfmann@namiiowa.com
Web: www.namiiowa.org

Speech, Language, and Hearing
LeAnn Ely, Executive Director
Iowa Speech-Language-Hearing Association
525 S.W. Fifth Street, Suite A
Des Moines, IA 50309-4501
(515) 282-8192
E-mail: leann@isha.org
Web: www.isha.org

Special Health Care Needs
Paula S. Connolly, Project Director
Health Information Center of Iowa
321 E. 6th Street
Des Moines, IA 50309
(515) 243-1713; (800) 450-8667
(800) 735-2942 (Relay in IA)
E-mail: f2finfo@askresource.org
Web: www.askresource.org

Spina Bifida
Rod Tressel, President
Spina Bifida Association of Iowa
P.O. Box 1456
Des Moines, IA 50305
(515) 964-8810
E-mail: SpinaBifidaIowa@yahoo.com
Web: www.spinabifidaia.com

Tourette Syndrome
Tourette Syndrome Association, Inc.
42-40 Bell Boulevard
Bayside, NY 11361-2820
(718) 224-2999
E-mail: ts@tsa-usa.org
Web: www.tsa-usa.org

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