National Resources

We hope this resource list helps you connect with the disability information and assistance you're seeking. This list was posted on May 17, 2005. Contact information for organizations, of course, is always changing, while this paper list will not! If you find that you need updated information about an organization, please visit our Web site at: www.nichcy.org. Under "Search for Information," search our "Organizations" library, and you'll find our most current information about these and other organizations. If you still have trouble locating an organization, e-mail us or give us a call.

Clearinghouses

Autism Information Center, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, (800) CDC-INFO (232-4636), E-mail: bddi@cdc.gov, Web: www.cdc.gov/ncbddd/dd/aic/about/default.htm

Cancer Information Service, National Cancer Institute, Room 3036A, 6116 Executive Blvd., MSC8322, Bethesda, MD 20892-8322, (800) 422-6237 (Voice), (800) 332-8615 (TTY), E-mail: cancergovstaff@mail.nih.gov , Web: http://cancer.gov, Materials available in Spanish, Spanish speaker on staff

Center on Positive Behavioral Interventions and Supports, 1761 Alder Street, 1235 University of Oregon, Eugene, OR 97403-5262, (541) 346-2505, E-mail: pbis@uoregon.edu, Web: www.pbis.org, Materials available in Spanish

Clearinghouse on Disability Information, Office of Special Education and Rehabilitative Services, Communication & Media Services, Room 3132, Switzer Building, 330 C Street S.W., Washington, DC 20202-2524, (202) 205-8241 (Voice), (202) 205-0136 (TTY)

DB-LINK, National Information Clearinghouse on Children, Who Are Deaf-Blind, 345 N. Monmouth Avenue, Monmouth, OR 97361, (800) 438-9376 (Voice), (800) 854-7013 (TTY), E-mail: dblink@tr.wou.edu, Web: www.dblink.org, Materials available in Spanish

ERIC Clearinghouse on Disabilities and Gifted Education, Council for Exceptional Children (CEC), (Project is no longer in operation, but a substantial Web site of disability-related materials is still available.)
Web: http://ericec.org

ERIC System, Educational Resources Information Center, (800) 538-3742, Web: http://eric.ed.gov

Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence, Center for Substance Abuse Prevention, Substance Abuse and Mental Health Services Administration, 2101 Gaither Road, Ste. 600, Rockville, MD 20850, (866) 786-7327, E-mail via the Web Form at: www.fascenter.samhsa.gov/about/contactUs/index.cfm, Web: http://www.fascenter.samhsa.gov/index.cfm

Genetic and Rare Diseases Information Center, P.O. Box 8126, Gaithersburg, MD 20898-8126, (888) 205-2311 (Voice), (888) 205-3223 (TTY), E-mail: gardinfo@nig.gov, Web: http://rarediseases.info.nih.gov/index.html, Spanish speaker on staff

HEATH Resource Center (National Clearinghouse, on Postsecondary Education for Individuals with, Disabilities), The George Washington University, 2121 K Street N.W., Suite 220, Washington, DC 20037, (800) 544-3284 (V/TTY), (202) 973-0904, E-mail: askheath@heath.gwu.edu, Web: www.heath.gwu.edu

HRSA Information Center (for publications and resources on health care services for low-income, uninsured individuals and those with special health care needs), Health Resources and Services Administration , U.S. Department of Health and Human Services, Parklawn Building, 5600 Fishers Lane, Rockville, MD 20857, (888) 275-4772, E-mail: ask@hrsa.gov, Web: www.ask.hrsa.gov, Publications available in Spanish, Spanish speaker on staff

Laurent Clerc National Deaf Education Center and Clearinghouse, KDES PAS-6, 800 Florida Avenue, NE, Washington, DC 20002-3695, (202) 651-5051 (V), (202) 651-5052 (TTY), E-mail: Clearinghouse.InfoToGo@gallaudet.edu, Web: http://clerccenter.gallaudet.edu/InfoToGo

National Center on Birth Defects and Developmental Disabilities, Department of Health and Human Services, Centers for Disease Control and Prevention, 1600 Clifton Road, Atlanta, GA 30333, (404) 639-3534, (800) 311-3435, E-mail: bddi@cdc.gov, Web: www.cdc.gov/ncbddd/

National Center for Infectious Diseases (NCID), Centers for Disease Control and Prevention, Mailstop C-14, 1600 Clifton Road, Atlanta, GA 30333, (404) 639-3534, (800) 311-3435, E-mail: Use form at www.cdc.gov/ncidod/feedback1.htm, Web: www.cdc.gov/ncidod

National Center on Secondary Education and Transition, University of Minnesota, 6 Pattee Hall, 150 Pillsbury Drive S.E., Minneapolis, MN 55455, (612) 624-2097, E-mail: ncset@umn.edu, Web: www.ncset.org

National Clearinghouse for Alcohol and Drug Information (NCADI), P.O. Box 2345, Rockville, MD 20847-2345, (800) 729-6686, (877) 767-8432 (espanol), (301) 468-2600, (800) 487-4899 (TTY), E-mail: info@health.org, Web: www.health.org, Materials available in Spanish, Spanish speaker on staff

National Diabetes Information Clearinghouse, One Information Way, Bethesda, MD 20892, (800) 860-8747, (301) 654-3327, E-mail: ndic@info.niddk.nih.gov , or via the Web Form at: http://diabetes.niddk.nih.gov/about/contact.htm, Web: http://diabetes.niddk.nih.gov/about/index.htm
Materials available in Spanish

National Digestive Diseases Information Clearinghouse, Two Information Way, Bethesda, MD 20892, (800) 891-5389, (301) 654-3810, E-mail: nddic@info.niddk.nih.gov, or via the Web Form at: http://digestive.niddk.nih.gov/about/contact.htm, Web: http://digestive.niddk.nih.gov/about/index.htm, Materials available in Spanish

National Health Information Center, P.O. Box 1133, Washington, D.C. 20013-1133, (800) 336-4797, (301) 565-4167, E-mail: info@nhic.org, Web: www.health.gov/nhic/, Materials available in Spanish, Spanish speaker on staff

National Heart, Lung, and Blood Institute Information Center, P.O. Box 30105, Bethesda, MD 20824-0105, (800) 575-9355, (301) 592-8573, (240) 629-3255 (TTY), E-mail: NHLBIinfo@rover.nhlbi.nih.gov, Web: www.nhlbi.nih.gov, Spanish speaker on staff

National Institute of Allergy and Infectious Diseases (NIAID), 31 Center Drive, MSC 2520, Building 31, Room 7A-50, Bethesda, MD 20892-2520, (301) 496-2263, Web: www.niaid.nih.gov

National Institute of Arthritis and Musculoskeletal, and Skin Diseases, Information Clearinghouse, 1 AMS Circle, Bethesda, MD 20892-3675, (877) 226-4267, (301) 495-4484 (Voice), (301) 565-2966 (TTY), E-mail: NIAMSinfo@mail.nih.gov, Web: www.niams.nih.gov, Materials available in Spanish, Spanish speaker on staff

National Institute of Neurological Disorders & Stroke (NINDS), NIH Neurological Institute, P.O. Box 5801, Bethesda, MD 20824, (800) 352-9424, (301) 496-5751, (301) 468-5981(TTY), E-mail via the Web Form at: http://www.ninds.nih.gov/contact_us.htm
Web: www.ninds.nih.gov, Materials available in Spanish, Spanish speaker on staff

National Institute on Deafness and Other Communication Disorders Clearinghouse, 31 Center Drive, MCS 2320, Bethesda, MD 20892-3456, (800) 241-1044 (V), (800) 241-1055 (TTY), E-mail: nidcdinfo@nidcd.nih.gov, Web: www.nidcd.nih.gov, Materials available in Spanish, Spanish speaker on staff

National Institute on Mental Health (NIMH), Public Inquiries, 6001 Executive Boulevard, Room 8184, MSC 9663, Bethesda, MD 20892-9663, (866) 615-6464, (301) 443-4513 (V), 301) 443-8431 (TTY), E-mail: nimhinfo@nih.gov, Web: www.nimh.nih.gov/publicat/index.cfm, Materials available in Spanish, Spanish speaker on staff

National Kidney and Urologic Diseases Information Clearinghouse, Three Information Way, Bethesda, MD 20892, (800) 891-5390, (301) 654-3327, E-mail: nkudic@info.niddk.nih.gov or via the Web form at: http://kidney.niddk.nih.gov/about/contact.htm, Web: http://kidney.niddk.nih.gov/about/index.htm, Materials available in Spanish

National Lead Information Center, 422 South Clinton Avenue, Rochester, NY 14620, (800) 424-5323, E-mail via the Web site., Web: www.epa.gov/lead/nlic.htm, Materials available in Spanish, Spanish speaker on staff

National Organization for Rare Disorders (NORD), P.O. Box 1968, Danbury, CT 06813-1968, (800) 999-6673, (203) 744-0100 (Voice), (203) 797-9590 (TTY), E-mail: orphan@rarediseases.org, Web: www.rarediseases.org

National Rehabilitation Information Center (NARIC), 4200 Forbes Boulevard, Suite 202, Lanham, MD 20706, (800) 346-2742, (301) 459-5900, (301) 459-5984 (TTY), E-mail: naricinfo@heitechservices.com, Web: www.naric.com

Research and Training Center on Family Support and Children's Mental Health, Portland State University, P.O. Box 751, Portland, OR 97207-0751, (503) 725-4040 (Voice), (503) 725-4165 (TTY), E-mail: gordon1@pdx.edu, Web: www.rtc.pdx.edu/, Materials available in Spanish, Spanish speaker on staff

Research and Training Center on Independent Living, University of Kansas, 4089 Dole Building, 1000 Sunnyside Ave., Lawrence, KS 66045-7555, (785) 864-4095 (Voice), (785) 864-0706 (TTY), E-mail: rtcil@ku.edu, Web: www.rtcil.org, Materials available in Spanish

Weight-Control Information Network (WIN), 1 WIN Way, Bethesda, MD 20892-3665, (202) 828-1025, (877) 946-4627, E-mail: win@info.niddk.nih.gov, Web: http://win.niddk.nih.gov/index.htm

Organizations

Alexander Graham Bell Association for the Deaf and Hard of Hearing, 3417 Volta Place N.W., Washington, DC 20007, (866) 337-5220, (202) 337-5220 (Voice), (202) 337-5221 (TTY), E-mail: parents@agbell.org, Web: www.agbell.org, Materials available in Spanish, Spanish speaker on staff

Alliance for Technology Access, 1304 Southpoint Blvd., Suite 240, Petaluma, CA 94954, (707) 778-3011, (707) 778-3015 (TTY), E-mail: atainfo@ataccess.org, Web: www.ataccess.org

American Association of Kidney Patients (AAKP), 3505 Frontage Road, Suite 315, Tampa, FL 33607, (800) 749-2257, (813) 636-8100, E-mail: info@aakp.org, Web: www.aakp.org, Materials available in Spanish, Spanish speaker on staff

American Association of Suicidology (to find a support group), 5221 Wisconsin Avenue, N.W., Washington, DC 20015, (800) 273-8255, (202) 237-2280, E-mail: info@suicidology.org, Web: www.suicidology.org

American Brain Tumor Association, 2720 River Road, Des Moines IA 60018, (847) 827-9910, (800) 886-2282 (Patient Services), E-mail: info@abta.org, Web: www.abta.org/, One publication in Spanish

American Council of the Blind, 1155 15th Street N.W., Suite1004, Washington, DC 20005, (800) 424-8666, (202) 467-5081, E-mail: info@acb.org, Web: www.acb.org

American Diabetes Association, 1701 N. Beauregard Street, Alexandria, VA 22311, (800) 342-2383, (703) 549-1500, E-mail: AskADA@diabetes.org, Web: www.diabetes.org, Materials available in Spanish, Spanish speaker on staff

American Foundation for the Blind (AFB), 11 Penn Plaza, Suite 300, New York, NY 10001, (800) 232-5463, (212) 502-7662 (TTY), E-mail: afbinfo@afb.net, Web: www.afb.org, Materials available in Spanish, Spanish speaker on staff