Special Needs National Toll-free Numbers & Web Sites
photo by:
Leonid Mamchenkov 
Introduction
The following is a selected list of toll-free numbers and, new with this edition, Web sites for national organizations concerned with disability and children's issues. Inclusion on this list does not imply endorsement by NICHCY or the Office of Special Education Programs. There are also many national disability organizations providing services and information which do not have toll-free numbers. If you would like additional help in locating assistance, or you find that a phone number or Web address listed on this sheet doesn't work, contact NICHCY at 1.800.695.0285 (Voice/TTY) or visit our Web site (www.nichcy.org). Contact information for organizations, of course, is always changing and we try our very best to keep up!
In this May 2005 edition, all new or changed entries are marked with a , beginning with the entirely new category, Adoption/Foster Care, just below.
Adoption / Foster Care
AdoptUSKids
1(888) 200-4005
www.adoptuskids.org
Adoptive Families (national adoption magazine, information for families before, during, and after adoption.)
1(800) 372-3300 (to subscribe)
www.adoptivefamilies.com
Fostering Families Today (a bimonthly magazine with foster care and adoption resources)
1(888) 924-6736
www.fosteringfamiliestoday.com
National Adoption Center
1(800) TO ADOPT (862-3678)
www.adopt.org
National Adoption Information Clearinghouse
1(888) 251-0075
http://naic.acf.hhs.gov/
AIDS
AIDSinfo (for information on HIV/AIDS, treatment, prevention, and research)
1(800) 448-0440 (V; English/Spanish)
1(888) 480-3739 (TTY)
www.aidsinfo.nih.gov
CDC-INFO (formerly the CDC National AIDS Hotline)
1(800) 232-4636 (V; English/Spanish)
1(888) 232-6348 (TTY)
www.cdc.gov/hiv/dhap.htm
CDC National Prevention Information Network
1(800) 458-5231 (V; English/Spanish)
1(800) 243-7012 (TTY)
www.cdcnpin.org
Alcohol and Drug Abuse
American Council for Drug Education (ACDE)
1(800) 488-3784
www.acde.org
Families Anonymous
1(800) 736-9805
www.familiesanonymous.org
National Clearinghouse for Alcohol and Drug Information
1(800) 729-6686 (V); 1(877) 767-8432 (Spanish)
1(800) 487-4889 (TTY)
www.health.org
National Council on Alcoholism & Drug Dependence
1(800) 622-2255
www.ncadd.org
Americans with Disabilities Act (ADA)
ADA InfoLine - U.S. Department of Justice
1(800) 514-0301 (V, English/Spanish)
1(800) 514-0383 (TTY)
www.usdoj.gov/crt/ada/adahom1.htm
Center for Universal Design
1(800) 647-6777
www.design.ncsu.edu/cud
Disability & Business Technical Assistance Centers
1(800) 949-4232 (V/TTY)
www.adata.org/centers.htm
Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
www.eeoc.gov
Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
http://janweb.icdi.wvu.edu
U.S. Access Board
1(800) 872-2253 (V)
1(800) 993-2822 (TTY)
www.access-board.gov
U.S. Department of Housing and Urban Development -- HUD User
1(800) 245-2691 (V)
1(800) 927-7589 (TTY)
www.huduser.org
Assistive Technology / Devices
ABLEDATA
1(800) 227-0216
www.abledata.com
AbleNet
1(800) 322-0956
www.ablenetinc.com
Alliance for Technology Access
1(800) 914-3017
www.ataccess.org
Apple Store for Education
1(800) MY APPLE (692-7753)
www.apple.com/education/accessibility
IBM Accessibility Center
1(800) 426-4832 (V); 1(800) 426-4833 (TTY)
www.ibm.com/able
National Lekotek Center's Toy Resource Helpline
1(800) 366-7529 (V); 1(800) 573-4446 (TTY)
www.lekotek.org
Georgia Tech Center for Assistive Technology and Environmental Access (CATEA)
1(800) 726-9119 (V/TTY)
www.assistivetech.net
Blindness / Visual Impairments
American Council of the Blind
1(800) 424-8666
(English/Spanish)
www.acb.org/
American Foundation for the Blind
1(800) 232-5463
www.afb.org
American Printing House for the Blind
1(800) 223-1839
www.aph.org/
Blind Childrens Center
1(800) 222-3566
www.blindcntr.org/
Library Reproduction Service
1(800) 255-5002
www.lrs-largeprint.com/
Lighthouse International
1(800) 829-0500 (V)
1(212) 821-9713 (TTY)
www.lighthouse.org/
National Association for Parents of Children with Visual Impairments
1(800) 562-6265
www.spedex.com/napvi/
National Library Service for the Blind and Physically Handicapped
1(800) 424-8567
www.loc.gov/nls/
Prevent Blindness America
1(800) 331-2020
www.preventblindness.org/
Recording for the Blind and Dyslexic
1(800) 221-4792
www.rfbd.org/
The Foundation Fighting Blindness
1(888) 394-3937 (V)
1(800) 683-5555 (TTY)
www.blindness.org/
Burns
Burn Survivors Throughout the World
1(800) 503-8058
www.burnsurvivorsttw.org/
Phoenix Society for Burn Survivors
1(800) 888-2876
www.phoenix-society.org/
Shriners Hospitals for Children
1(800) 237-5055
www.shrinershq.org/
Cancer
American Cancer Society
1(800) 227-2345 (English/Spanish)
www.cancer.org
American Cancer Research Center
Cancer Information and Counseling Line
1(800) 525-3777
www.amc.org/
Candlelighters Childhood Cancer Foundation
1(800) 366-2223
www.candlelighters.org/
National Brain Tumor Foundation
1(800) 934-2873 (English/Spanish)
www.braintumor.org/
National Cancer Institute Information Service
1(800) 422-6237 (V; English/Spanish)
1(800) 332-8615 (TTY)
http://cis.nci.nih.gov/
Support for People with Oral and Head and Neck Cancer
1(800) 377-0928
www.spohnc.org/
Child Abuse
National Center for Missing and Exploited Children
1(800) 843-5678 (V; English/Spanish)
1(800) 826-7653 (TTY)
www.missingkids.com/
National Child Abuse Hotline
1(800) 422-4453
www.childhelpusa.org/
National Clearinghouse on Child Abuse and Neglect Information
1(800) 394-3366 (English/Spanish)
http://nccanch.acf.hhs.gov/
Prevent Child Abuse America
1(800) 244-5373 (English/Spanish)
www.preventchildabuse.org/
Child Care
Child Care Aware
1(800) 424-2246 (English/Spanish)
www.childcareaware.org
National Child Care Information Center
1(800) 616-2242 (V; English/Spanish)
1(800) 516-2242 (TTY)
http://nccic.org/
National Resource Center for Health and Safety in Child Care
1(800) 598-5437
http://nrc.uchsc.edu/
Communication Disorders
American Speech-Language-Hearing Association
1(800) 638-8255
www.asha.org
Communication Aid Manufacturers Association
1(800) 441-2262
www.aacproducts.org/index.lasso
National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V; English/Spanish)
1(800) 241-1055 (TTY)
www.nidcd.nih.gov/
National Stuttering Association
1(800) 937-8888
www.nsastutter.org/
Stuttering Foundation of America
1(800) 992-9392
www.stuttersfa.org
Craniofacial Syndromes
Aboutface USA
1(888) 486-1209
www.aboutfaceusa.org
Children's Craniofacial Association
1(800) 535-3643
www.ccakids.org/
Craniofacial Foundation of America
1(800) 418-3223
www.craniofacialcenter.com
FACES -- National Craniofacial Association
1(800) 332-2373
www.faces-cranio.org/
Foundation for Nager and Miller Syndromes
1(800) 507-3667
www.nagerormillersynd.com
Crisis Intervention
Air Care Alliance
1(888) 260-9707
www.aircareall.org
Angel Flight America
1(877) 858-7788
www.angelflightamerica.org
National Hopeline Network
1(800) SUICIDE (784-2433)
www.hopeline.com/
National Suicide Prevention Lifeline
1(800) 273-TALK (8255)
1(800) 799-4TTY (4889) (TTY)
www.suicidepreventionlifeline.org/
Nineline Crisis Hotline
1(800) 999-9999
www.nineline.org/
Deafness / Hearing Impairments
Alexander Graham Bell
Association for the Deaf and Hard of Hearing
1(866) 337-5220
www.agbell.org
American Academy of Audiology
1(800) 222-2336
www.audiology.org
American Society for Deaf Children
1(800) 942-2732 (V/TTY)
www.deafchildren.org/
American Speech-Language-Hearing Association
1(800) 638-8255
www.asha.org
Better Hearing Institute
1(800) 327-9355 (V/TTY)
www.betterhearing.org
Hear Now
1(800) 648-4327 (V/TTY)
www.sotheworldmayhear.org
Hearing Aid Helpline
1(800) 521-5247 (V/TTY)
http://ihsinfo.org
John Tracy Clinic
1(800) 522-4582 (V/TTY; English/Spanish)
1(213) 748-5481 (V; in 213 area)
1(213) 747-2924 (TTY; in 213 area)
www.johntracyclinic.org/
National Cued Speech Association
1(800) 459-3529
www.cuedspeech.org
National Information Clearinghouse on Children Who are Deaf-Blind (DB-LINK)
1(800) 438-9376 (V)
1(800) 854-7013 (TTY)
www.tr.wou.edu/dblink
National Institute on Deafness and Other Communication Disorders Clearinghouse
1(800) 241-1044 (V; English/Spanish)
1(800) 241-1055 (TTY)
www.nidcd.nih.gov
Postsecondary Education Programs Network Resource Center (PEPNet)
1(888) 684-4695 (V/TTY)
http://prc.csun.edu/
Disability Awareness / Community Inclusion
Best Buddies
1(800) 89 BUDDY (892-8339)
www.bestbuddies.org
Kids on the Block
1(800) 368-5437
www.kotb.com
Friends Who Care (from Easter Seals)
1(800) 221-6827
www.easterseals.com
VSA arts
1(800) 933-8721
www.vsarts.org
Yes I Can! Foundation for Exceptional Children
1(800) 224-6830, Ext. 450
http://yesican.sped.org
Education
American Association for Vocational Instructional Materials
1(800) 228-4689
www.aavim.com
Association for Career & Technical Education
1(800) 826-9972 (V/TTY)
www.acteonline.org/
Association for Childhood Education International
1(800) 423-3563
www.acei.org
The Center for Comprehensive School Reform and Improvement
1(877) 277-2744
www.csrclearinghouse.org/
Early Childhood and Parenting Collaborative
1(877) 275-3227 (V/TTY)
http://ecap.crc.uiuc.edu/
ERIC System (Educational Resources Information Center)
1(800) 538-3742
www.eric.ed.gov
Federal Student Aid Information Center
1(800) 433-3243 (V; English/Spanish)
1(800) 730-8913 (TTY)
http://studentaid.ed.gov/
HEATH Resource Center (for information on post-secondary education for individuals with disabilities)
1(800) 544-3284 (V/TTY)
www.heath.gwu.edu
National Alliance of Black School Educators
1(800) 221-2654
www.nabse.org
National Association for the Education of Young Children (NAEYC)
1(800) 424-2460
www.naeyc.org
National Clearinghouse for English Language Acquisition & Language Instruction Educational Programs (NCELA)
1(800) 321-6223
www.ncela.gwu.edu
National Information Center for Educational Media
1(800) 926-8328 (V/TTY)
www.nicem.com/
National Institute for Literacy - Literacy Hotline
1(800) 228-8813 (V; English/Spanish)
1(877) 576-7734 (TTY)
www.nifl.gov
National Library of Education (NLE)
1(800) 424-1616 (English/Spanish)
www.ed.gov/NLE
National Middle School Association
1(800) 528-6672
www.nmsa.org
U.S. Department of Education Information Resource Center
1(800) 872-5327 (V; English/Spanish)
1(800) 437-0833 (TTY)
www.ed.gov/about/offices/list/oiia/irc.html
Also see "Literacy."
Employment / Independent Living
Disabled and Alone, Inc.
1(800) 995-0066
www.disabledandalone.org
Education, Career, and Community Program (a program of the Northwest Regional Educational Laboratory)
1(800) 547-6339
www.nwrel.org/
Employer Assistance Referral Network
1(866) 327-6669 (V/TTY)
www.earnworks.com
Equal Employment Opportunity Commission
1(800) 669-4000 (V; English/Spanish)
1(800) 669-6820 (TTY)
www.eeoc.gov
Job Accommodation Network
1(800) 526-7234 (V/TTY)
1(800) 232-9675 (V/TTY; ADA Information)
http://janweb.icdi.wvu.edu
National Center on Workforce and Disability/Adult
1(888) 886-9898 (V/TTY)
www.onestops.info/
National Collaborative on Workforce and Disability/Youth
1(877) 871-0744
www.ncwd-youth.info/
National Council on Independent Living
1(877) 525-3400
www.ncil.org
National Resource Center on Supported Living and Choice: Center on Human Policy
1(800) 894-0826
http://thechp.syr.edu/nrc.html
Proyecto Visión Hotline
1(866) EMPLEO 1 (1-866-367-5361)
www.proyectovision.net
Financial Counseling
National Foundation for Consumer Credit
1(800) 388-2227
1(800) 682-9832 (Spanish)
www.nfcc.org
Hospice
Caring Connections
1(800) 658-8898
www.caringinfo.org
Children's Hospice International
1(800) 242-4453 (V/TTY)
www.chionline.org
Hospice Education Institute
1(800) 331-1620
www.hospiceworld.org
Information Centers
ABLEDATA (for information on assistive technology)
1(800) 227-0216 (V/TTY)
www.abledata.com
HRSA Information Center (U.S. Dept. of Health & Human Services)
1(888) 275-4772 (V; English/Spanish)
1 (877) 489-4772 (TTY)
www.ask.hrsa.gov
March of Dimes
1(888) 663-4637 (English/Spanish)
www.marchofdimes.com
National Center on Birth Defects and Developmental Disabilities
1(800) CDC-INFO (232-4636)
www.cdc.gov/ncbddd/
National Center on Low-Incidence Disabilities (NCLID)
1(800) 395-2693 (V/TTY)
http://nclid.unco.edu/newnclid/
National Dissemination Center for Children with Disabilities (NICHCY)
1(800) 695-0285 (V/TTY; English/Spanish)
www.nichcy.org
National Health Information Center
1(800) 336-4797
www.health.gov/nhic
National Lead Information Center
1(800) 424-5323 (English/Spanish)
www.epa.gov/lead/nlic.htm
National Library of Medicine
1(888) 346-3656
www.nlm.nih.gov
Office of Minority Health Resource Center
1(800) 444-6472 (English/Spanish)
www.omhrc.gov/
Zero to Three/National Center for Infants, Toddlers, and Families
1(800) 899-4301
www.zerotothree.org/
Also see "Medical / Health Disorders" for Information Centers addressing specific health disorders.
Literacy
National Institute for Literacy - Literacy Hotline
1(800) 228-8813 (V; English/Spanish)
1(877) 576-7734 (TTY)
www.nifl.gov
ProLiteracy Worldwide
1(888) 528-2224 (English/Spanish)
www.proliteracy.org/
Reading is Fundamental
1(877) 743-7323
www.rif.org
Medical / Health Disorders
American Academy of Allergy, Asthma, and Immunology
1(800) 822-2762
www.aaaai.org
American Association of Kidney Patients
1(800) 749-2257
www.aakp.org
American Behcet's Disease Association
1(800) 7 BEHCETS (723-4238)
www.behcets.com
American Brain Tumor Association
1(800) 886-2282
http://hope.abta.org/
American Cancer Society
1(800) 227-2345 (English/Spanish)
www.cancer.org
American Diabetes Association
1(800) 342-2383 (English/Spanish)
www.diabetes.org
American Heart Association
1(800) 242-8721 (English/Spanish)
www.americanheart.org
American Kidney Fund
1(800) 638-8299
www.kidneyfund.org
American Liver Foundation
1(800) GO LIVER (465-4837)
1(888) 4HEP USA (443-7872)
www.liverfoundation.org
American Lung Association
1(800) 586-4872 (English/Spanish)
www.lungusa.org
American Stroke Association
1(888) 478-7653
www.strokeassociation.org
American Syringomyelia Alliance Project
1(800) 272-7282
www.asap.org
Angioma Alliance
1(866) 432-5226
www.angiomaalliance.org
Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (English/Spanish)
www.aamds.org
Arthritis Foundation
1(800) 568-4045
www.arthritis.org
Asthma and Allergy Foundation of America
1(800) 727-8462
www.aafa.org
Celiac Sprue Association
1(877) CSA-4CSA (272-4272)
www.csaceliacs.org
Children's Tumor Foundation (formerly the National Neurofibromatosis Foundation)
1(800) 323-7938 (English/Spanish)
www.ctf.org
Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS)
1(800) 442-3437
www.cfids.org
Cleft Palate Foundation
1(800) 24 CLEFT (242-5338)
www.cleftline.org
Cooley’s Anemia Foundation
1(800) 522-7222
www.thalassemia.org
Crohn's and Colitis Foundation of America
1(800) 932-2423
www.ccfa.org
Cystic Fibrosis Foundation
1(800) 344-4823
www.cff.org
Cystinosis Foundation
1(800) 392-8458
www.cystinosisfoundation.org
Dystrophic Epidermolysis Bullosa Research Association of America (DebRA)
1(866) 332-7276 (nurse line)
www.debra.org
Epilepsy Foundation
1(800) 332-1000 (English/Spanish)
www.epilepsyfoundation.org
Family Voices: A National Coalition Speaking for Children with Special Health Care Needs
1(888) 835-5669
www.familyvoices.org
First Candle/SIDS Alliance
1(800) 221-7437
www.sidsalliance.org/
Foundation for Ichthyosis and Related Skin Types
1(800) 545-3286
www.scalyskin.org/
Huntington's Disease Society of America
1(800) 345-4372
www.hdsa.org
Immune Deficiency Foundation
1(800) 296-4433
www.primaryimmune.org
International Foundation for Functional Gastrointestinal Disorders
1(888) 964-2001
www.iffgd.org
Juvenile Diabetes Research Foundation International
1(800) 533-CURE (2873)
www.jdrf.org/
Kennedy Krieger Institute
1(888) 554-2080
www.kennedykrieger.org/
Leukemia and Lymphoma Society
1(800) 955-4572
www.leukemia-lymphoma.org
Lupus Foundation of America
1(800) 558-0121
1(800) 558-0231 (Spanish)
www.lupus.org
Lyme Disease Foundation Hotline
1(800) 886-LYME (5963)
www.lyme.org/index.html
MAGIC Foundation (Major Aspects of Growth Disorders In Children)
1(800) 3 MAGIC 3 (362-4423)
www.magicfoundation.org
Malignant Hyperthermia Association
1(800) 644-9737
www.mhaus.org
March of Dimes
1(888) 663-4637 (English/Spanish)
www.marchofdimes.com
National Association of Hospital Hospitality Houses (NAHHH)
1(800) 542-9730
www.nahhh.org/
National Brain Tumor Foundation
1(800) 934-2873 (English/Spanish)
www.braintumor.org/
National Diabetes Information Clearinghouse
1(800) 860-8747
http://diabetes.niddk.nih.gov
National Digestive Diseases Information Center
1(800) 891-5389
www.niddk.nih.gov
National Eating Disorders Association
1(800) 931-2237
www.nationaleatingdisorders.org
National Foundation for Transplants
1(800) 489-3863
www.transplants.org
National Health Information Center
1(800) 336-4797
www.health.gov/nhic
National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)
www.nhlbi.nih.gov
National Hemophilia Foundation
1 (800) 424-2634
www.hemophilia.org
National Institute of Arthritis and Musculoskeletal and Skin Diseases Clearinghouse
1(877) 226-4267 (English/Spanish)
www.niams.nih.gov
National Institute of Child Health and Human Development
1(800) 370-2943
www.nichd.nih.gov
National Jewish Medical and Research Center
1(800) 222-5864
www.njc.org/
National Kidney Foundation
1(800) 622-9010
www.kidney.org
National Lymphedema Network
1(800) 541-3259
www.lymphnet.org
National Marfan Foundation
1(800) 8 MARFAN (862-7326)
www.marfan.org
National Multiple Sclerosis Society
1(800) 344-4867
1(866) KIDS W MS (543-7967) (English/Spanish)
www.nmss.org
National Organization for Albinism and Hypopigmentation
1(800) 473-2310
www.albinism.org
National Patient Travel Helpline
1(800) 296-1217
www.patienttravel.org/
National Scoliosis Foundation
1(800) 673-6922
www.scoliosis.org
National Tay-Sachs & Allied Diseases Association
1(800) 906-8723
www.ntsad.org
Neurofibromatosis, Inc.
1(800) 942-6825
www.nfinc.org/
Osteogenesis Imperfecta Foundation
1(800) 981-2663
www.oif.org
Oxalosis & Hyperoxaluria Foundation
1(800) OHF-8699 (643-8699)
www.ohf.org
Scleroderma Foundation
1(800) 722-4673
www.scleroderma.org
Shriners Hospital for Children
1(800) 237-5055
www.shrinershq.org/
Sickle Cell Disease Association of America
1(800) 421-8453
www.sicklecelldisease.org
United Leukodystrophy Foundation
1(800) 728-5483
www.ulf.org/
United Ostomy Association
1(800) 826-0826
www.uoa.org
Vestibular Disorders Association
1(800) 837-8428
www.vestibular.org
Weight-Control Information Network (WIN)
1(877) 946-4627
http://win.niddk.nih.gov/index.htm
Williams Syndrome Association
1(800) 806-1871
www.williams-syndrome.org
Wilson's Disease Association
1(800) 399-0266
www.wilsonsdisease.org
Also see "Specific Disabilities" resources.
Mental Health
American Psychiatric Association
1(888) 35 PSYCH (357-7924)
www.psych.org
American Psychological Association's Consumer Help Center
1(800) 964-2000
www.apahelpcenter.org
Depression and Bipolar Support Alliance
1(800) 826-3632
www.dbsalliance.org
Families Anonymous
1(800) 736-9805
www.familiesanonymous.org
National Alliance for the Mentally Ill
1(800) 950-6264 (English/Spanish)
www.nami.org/
National Association for the Dually Diagnosed
1(800) 331-5362
www.thenadd.org
National Hopeline Network
1(800) SUICIDE (784-2433) (English/Spanish)
www.hopeline.com/
National Institute of Mental Health (NIMH) Information Center
1(866) 615-6464 (English/Spanish)
www.nimh.nih.gov/
National Mental Health Association
1(800) 969-6642 (V; English/Spanish)
1(800) 433-5959 (TTY)
www.nmha.org/
National Mental Health Consumer Self-Help Clearinghouse
1(800) 553-4539 (English/Spanish)
www.mhselfhelp.org
National Mental Health Information Center
1(800) 789-2647 (English/Spanish)
www.mentalhealth.org/
National Suicide Prevention Lifeline
1(800) 273-TALK (8255)
1(800) 799-4TTY (4889) (TTY)
www.suicidepreventionlifeline.org/
Minority Issues
Gates Millennium Scholars
1(877) 690-4677
www.gmsp.org
Hispanic Scholarship Fund
1(877) 473-4636
www.hsf.net
National Alliance of Black School Educators
1(800) 221-2654
www.nabse.org
National Clearinghouse for English Langugage Acquisition (NCELA)
1(800) 321-6223
www.ncela.gwu.edu
National Native American Families Together Parent Center
1(877) 205-7501
www.nativefamilynetwork.com/
Office of Minority Health Resource Center
1(800) 444-6472 (English/Spanish)
www.omhrc.gov/
Proyecto Visión Hotline
1(866) Empleo 1 (367-5361)
www.proyectovision.net/
Parent Support
Compassionate Friends (grief support after the death of a child)
1(877) 969-0010
www.compassionatefriends.org
MUMS: National Parent to Parent Network
1(877) 336-5333
www.netnet.net/mums/
National Organization of Mothers of Twins Clubs
1(877) 540-2200
www.nomotc.org
Parent Advocacy Coalition for Educational Rights (PACER Center)
1(888) 248-0822
www.pacer.org
Special Needs Advocate for Parents (SNAP)
1(888) 310-9889
www.snapinfo.org
Specialized Training of Military Parents (STOMP)
1(800) 5 PARENT (572-7368)
www.stompproject.org
Through the Looking Glass
1(800) 644-2666
www.lookingglass.org
Physical Disabilities
Canine Companions for Independence
1(800) 572-BARK (2275)
www.caninecompanions.org
Christopher and Dana Reeve Paralysis Resource Center
1(800) 539-7309
www.paralysis.org
Courage Center
1(888) 846-8253
www.courage.org
Craniofacial Foundation of America
1(800) 418-3223
www.craniofacialcenter.com
Easter Seals -- National Office
1(800) 221-6827 (V)
1(312) 726-4258 (TTY)
www.easterseals.com
Families of Spinal Muscular Atrophy
1(800) 886-1762
www.fsma.org
Human Growth Foundation
1(800) 451-6434
www.hgfound.org
Muscular Dystrophy Association
1(800) 572-1717
www.mdausa.org/
National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1(877) 226-4267
www.niams.nih.gov
National Library Service for the Blind and Physically Handicapped
1(800) 424-8567
www.loc.gov/nls/
National Limb Loss Information Center
1(888) 267-5669 (English/Spanish)
www.amputee-coalition.org/
National Scoliosis Foundation
1(800) 673-6922
www.scoliosis.org
National Spasmodic Torticollis Association
1(800) 487-8385
www.torticollis.org
National Spinal Cord Injury Hotline
1(800) 962-9629
www.spinalcord.org
Pathways Awareness Foundation
1(800) 955-2445
www.pathwaysawareness.org
Spina Bifida Association of America
1(800) 621-3141 (English/Spanish)
www.sbaa.org
United Cerebral Palsy Associations
1(800) 872-5827
www.ucp.org/
Winners on Wheels (WOW)
1(800) WOW-Talk (969-8255)
www.wowusa.com
Rare Syndromes
Genetic Alliance
1(800) 336-4363
http://geneticalliance.org
Genetic & Rare Diseases Information Center
1(888) 205-2311 (V; English/Spanish)
1(888) 205-3223 (TTY)
http://rarediseases.info.nih.gov/
National Organization for Rare Disorders (NORD)
1(800) 999-6673 (V/TTY)
www.rarediseases.org/
Recreation
Adventures in Movement for the Handicapped
1(800) 332-8210
www.aimforthehandicapped.org/
Best Buddies
1(800) 89 BUDDY 892-8339
www.bestbuddies.org
Girl Scouts of the USA
1(800) 478-7248
www.girlscouts.org
National Center on Physical Activity and Disability
1(800) 900-8086 (V/TTY)
www.ncpad.org
National Lekotek Center's Toy Resource Helpline
1(800) 366-7529 (V)
1(800) 573-4446 (TTY)
www.lekotek.org
North American Riding for the Handicapped, Inc.
1(800) 369-7433
www.narha.org
Rehabilitation
ABLEDATA
1(800) 227-0216 (V/TTY)
www.abledata.com
ADED: Association for Driver Rehabilitation Specialists
1(800) 290-2344
www.driver-ed.org
National Clearinghouse of Rehabilitation Training Materials
1(800) 223-5219
www.nchrtm.okstate.edu
National Rehabilitation Information Center
1(800) 346-2742
www.naric.com
Respiratory Disorders
American Lung Association
1(800) 586-4872
www.lungusa.org
National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)
www.nhlbi.nih.gov
National Jewish Medical & Research Center
1(800) 222-5864
www.njc.org/
Respite Care
National Family Caregivers Association
1(800) 896-3650
www.thefamilycaregiver.org
Rural
Rural Institute on Disabilities
1(800) 732-0323
http://ruralinstitute.umt.edu/
Specific Disabilities
American Association on Mental Retardation
1(800) 424-3688 (outside Metro DC area)
(202) 387-1968 (in DC)
www.aamr.org
Angelman Syndrome Foundation
1(800) 432-6435
www.angelman.org/angel/
The Arc of the United States
1(800) 433-5255
www.thearc.org
Autism Society of America
1(800) 3 AUTISM (328-8476)
www.autism-society.org
Beckwith Wiedemann Support Network
1(800) 837-2976
http://beckwith-wiedemann.org
Brain Injury Association Family Helpline
1(800) 444-6443 (English/Spanish)
www.biausa.org
Center for the Study and Treatment of Usher Syndrome at Boys Town National Research Hospital
1(800) 835-1468 (V/TTY)
www.boystownhospital.org
Charge Syndrome Foundation
1(800) 442-7604
www.chargesyndrome.org
Children and Adults with Attention-Deficit/ Hyperactivity Disorder (CHADD)
1(800) 233-4050
(301) 306-7070 (in Washington, DC metro area)
www.chadd.org
Cornelia de Lange Syndrome Foundation
1(800) 223-8355
(860) 676-8166 (in CT)
www.cdlsusa.org
Family Empowerment Network: Support for Families Affected by FAS/E
1(800) 462-5254 (for families)
www.fammed.wisc.edu/fen
Fetal Alcohol Spectrum Disorders Center
1(866) 786-7327
www.fascenter.samhsa.gov/index.cfm
International Dyslexia Association
1(800) 222-3123
www.interdys.org
International Rett Syndrome Association
1(800) 818-7388
www.rettsyndrome.org
Learning Disabilities Association of America
1(888) 300-6710
www.ldaamerica.org
Little People of America
1(888) 572-2001
www.lpaonline.org
National Center for Learning Disabilities
1(888) 575-7373
www.ncld.org/
National Down Syndrome Congress
1(800) 232-6372
www.ndsccenter.org/
National Down Syndrome Society
1(800) 221-4602 (English/Spanish)
www.ndss.org/
National Fragile X Foundation
1(800) 688-8765
www.fragilex.org
National Gaucher Foundation
1(800) 428-2437
www.gaucherdisease.org/
National Niemann-Pick Disease Foundation
1(877) 287-3672
www.nnpdf.org/
National Organization on Fetal Alcohol Syndrome
1(800) 666-6327
www.nofas.org
National Reye's Syndrome Foundation
1(800) 233-7393
www.reyessyndrome.org
National Stuttering Association
1(800) 937-8888
www.nsastutter.org
Prader-Willi Syndrome Association
1(800) 926-4797
www.pwsausa.org
Spina Bifida Association of America
1(800) 621-3141 (English/Spanish)
www.sbaa.org
Sturge-Weber Foundation
1(800) 627-5482
www.sturge-weber.com/
Stuttering Foundation of America
1(800) 992-9392
www.stuttersfa.org
Support Organization for Trisomy 18, 13, and Related Chromosomal Disorders
1(800) 716-7638
www.trisomy.org
Tuberous Sclerosis Alliance
1(800) 225-6872
www.tsalliance.org/
United Cerebral Palsy Associations
1(800) 872-5827
www.ucp.org/
Williams Syndrome Association
1(800) 806-1871
www.wsf.org/
Also see resources for "Medical/Health Disorders."
Suicide Prevention
American Foundation for Suicide Prevention
1(888) 333-2377
www.afsp.org
National Hopeline Network
1(800) SUICIDE (784-2433)
www.hopeline.com
National Suicide Prevention Lifeline
1(800) 273-TALK (8255)
www.suicidepreventionlifeline.org
Nineline Crisis Hotline
1(800) 999-9999
www.nineline.org
See also "Crisis Intervention" and "Mental Health" resources.
Supplemental Security Income (SSI)
Social Security Administration
1(800) 772-1213 (V; English/Spanish)
1(800) 325-0778 (TTY)
www.ssa.gov/
Trauma
American Trauma Society
1(800) 556-7890
www.amtrauma.org/
Brain Injury Association Family Helpline
1(800) 444-6443
www.biausa.org
National Spinal Cord Injury Association
1(800) 962-9629
www.spinalcord.org
Wishes for Children
Believe in Tomorrow National Children's Foundation
1(800) 933-5470
www.believeintomorrow.org
Sunshine Foundation
1(800) 767-1976
http://sunshinefoundation.org/
Reprinted with the permission of the National Dissemination Center.
Ask a Question
Have questions about this article or topic? AskToday on Education.com
Videos: Parenting Tips 
Best for Bébé? Global Perspectives on Perfect Parenting SEASONAL
Black History Month
Special Editions
- Bullying
- College Financing
- Childhood Immunizations
- Digital World Parenting
- Gender Differences
- Obesity Prevention
- Going to College
Browse by Topic
Browse by Grade
Activity of the Week Newsletter
Get our latest activities sent to you weekly:
- Grade Specific
- Teacher Approved
- Straight to Your Inbox!
Popular Articles
- Cell Phones for Kids: 6 Great Picks
- 7 Things to Do When a Teacher Calls Home
- Cyber Bullying Statistics: What the Facts Mean for You
- Sudbury Schools: A Radical Alternative to No Child Left Behind
- Healthy Snack Ideas for Kids
- The Definition of Autism: About to Change?
- eBooks for Kids: Hurtful or Helpful for Young Readers?
- Fight Obesity, Naked Chef-Style
- Is Your Child a Cheater?
- What Do Test Scores Really Say About a School?
Add your own comment