Special Needs National Toll-free Numbers & Web Sites (continued)

American Stroke Association
1(888) 478-7653
www.strokeassociation.org

American Syringomyelia Alliance Project
1(800) 272-7282
www.asap.org

Angioma Alliance
1(866) 432-5226
www.angiomaalliance.org

Aplastic Anemia & MDS International Foundation
1(800) 747-2820 (English/Spanish)
www.aamds.org

Arthritis Foundation
1(800) 568-4045
www.arthritis.org

Asthma and Allergy Foundation of America
1(800) 727-8462
www.aafa.org

Celiac Sprue Association
1(877) CSA-4CSA (272-4272)
www.csaceliacs.org

Children's Tumor Foundation (formerly the National Neurofibromatosis Foundation)
1(800) 323-7938 (English/Spanish)
www.ctf.org

Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS)
1(800) 442-3437
www.cfids.org

Cleft Palate Foundation
1(800) 24 CLEFT (242-5338)
www.cleftline.org

Cooley’s Anemia Foundation
1(800) 522-7222
www.thalassemia.org

Crohn's and Colitis Foundation of America
1(800) 932-2423
www.ccfa.org

Cystic Fibrosis Foundation
1(800) 344-4823
www.cff.org

Cystinosis Foundation
1(800) 392-8458
www.cystinosisfoundation.org

Dystrophic Epidermolysis Bullosa Research Association of America (DebRA)
1(866) 332-7276 (nurse line)
www.debra.org

Epilepsy Foundation
1(800) 332-1000 (English/Spanish)
www.epilepsyfoundation.org

Family Voices: A National Coalition Speaking for Children with Special Health Care Needs
1(888) 835-5669
www.familyvoices.org

First Candle/SIDS Alliance
1(800) 221-7437
www.sidsalliance.org/

Foundation for Ichthyosis and Related Skin Types
1(800) 545-3286
www.scalyskin.org/

Huntington's Disease Society of America
1(800) 345-4372
www.hdsa.org

Immune Deficiency Foundation
1(800) 296-4433
www.primaryimmune.org

International Foundation for Functional Gastrointestinal Disorders
1(888) 964-2001
www.iffgd.org

Juvenile Diabetes Research Foundation International
1(800) 533-CURE (2873)
www.jdrf.org/

Kennedy Krieger Institute
1(888) 554-2080
www.kennedykrieger.org/

Leukemia and Lymphoma Society
1(800) 955-4572
www.leukemia-lymphoma.org

Lupus Foundation of America
1(800) 558-0121
1(800) 558-0231 (Spanish)
www.lupus.org

Lyme Disease Foundation Hotline
1(800) 886-LYME (5963)
www.lyme.org/index.html

MAGIC Foundation (Major Aspects of Growth Disorders In Children)
1(800) 3 MAGIC 3 (362-4423)
www.magicfoundation.org

Malignant Hyperthermia Association
1(800) 644-9737
www.mhaus.org

March of Dimes
1(888) 663-4637 (English/Spanish)
www.marchofdimes.com

National Association of Hospital Hospitality Houses (NAHHH)
1(800) 542-9730
www.nahhh.org/

National Brain Tumor Foundation
1(800) 934-2873 (English/Spanish)
www.braintumor.org/

National Diabetes Information Clearinghouse
1(800) 860-8747
http://diabetes.niddk.nih.gov

National Digestive Diseases Information Center
1(800) 891-5389
www.niddk.nih.gov

National Eating Disorders Association
1(800) 931-2237
www.nationaleatingdisorders.org

National Foundation for Transplants
1(800) 489-3863
www.transplants.org

National Health Information Center
1(800) 336-4797
www.health.gov/nhic

National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)
www.nhlbi.nih.gov

National Hemophilia Foundation
1 (800) 424-2634
www.hemophilia.org

National Institute of Arthritis and Musculoskeletal and Skin Diseases Clearinghouse
1(877) 226-4267 (English/Spanish)
www.niams.nih.gov

National Institute of Child Health and Human Development
1(800) 370-2943
www.nichd.nih.gov

National Jewish Medical and Research Center
1(800) 222-5864
www.njc.org/

National Kidney Foundation
1(800) 622-9010
www.kidney.org

National Lymphedema Network
1(800) 541-3259
www.lymphnet.org

National Marfan Foundation
1(800) 8 MARFAN (862-7326)
www.marfan.org

National Multiple Sclerosis Society
1(800) 344-4867
1(866) KIDS W MS (543-7967) (English/Spanish)
www.nmss.org

National Organization for Albinism and Hypopigmentation
1(800) 473-2310
www.albinism.org

National Patient Travel Helpline
1(800) 296-1217
www.patienttravel.org/

National Scoliosis Foundation
1(800) 673-6922
www.scoliosis.org

National Tay-Sachs & Allied Diseases Association
1(800) 906-8723
www.ntsad.org

Neurofibromatosis, Inc.
1(800) 942-6825
www.nfinc.org/

Osteogenesis Imperfecta Foundation
1(800) 981-2663
www.oif.org

Oxalosis & Hyperoxaluria Foundation
1(800) OHF-8699 (643-8699)
www.ohf.org

Scleroderma Foundation
1(800) 722-4673
www.scleroderma.org

Shriners Hospital for Children
1(800) 237-5055
www.shrinershq.org/

Sickle Cell Disease Association of America
1(800) 421-8453
www.sicklecelldisease.org

United Leukodystrophy Foundation
1(800) 728-5483
www.ulf.org/

United Ostomy Association
1(800) 826-0826
www.uoa.org

Vestibular Disorders Association
1(800) 837-8428
www.vestibular.org

Weight-Control Information Network (WIN)
1(877) 946-4627
http://win.niddk.nih.gov/index.htm

Williams Syndrome Association
1(800) 806-1871
www.williams-syndrome.org

Wilson's Disease Association
1(800) 399-0266
www.wilsonsdisease.org

Also see "Specific Disabilities" resources.

Mental Health

American Psychiatric Association
1(888) 35 PSYCH (357-7924)
www.psych.org

American Psychological Association's Consumer Help Center
1(800) 964-2000
www.apahelpcenter.org

Depression and Bipolar Support Alliance
1(800) 826-3632
www.dbsalliance.org

Families Anonymous
1(800) 736-9805
www.familiesanonymous.org

National Alliance for the Mentally Ill
1(800) 950-6264 (English/Spanish)
www.nami.org/

National Association for the Dually Diagnosed
1(800) 331-5362
www.thenadd.org

National Hopeline Network
1(800) SUICIDE (784-2433) (English/Spanish)
www.hopeline.com/

National Institute of Mental Health (NIMH) Information Center
1(866) 615-6464 (English/Spanish)
www.nimh.nih.gov/

National Mental Health Association
1(800) 969-6642 (V; English/Spanish)
1(800) 433-5959 (TTY)
www.nmha.org/

National Mental Health Consumer Self-Help Clearinghouse
1(800) 553-4539 (English/Spanish)
www.mhselfhelp.org

National Mental Health Information Center
1(800) 789-2647 (English/Spanish)
www.mentalhealth.org/

National Suicide Prevention Lifeline
1(800) 273-TALK (8255)
1(800) 799-4TTY (4889) (TTY)
www.suicidepreventionlifeline.org/

Minority Issues

Gates Millennium Scholars
1(877) 690-4677
www.gmsp.org

Hispanic Scholarship Fund
1(877) 473-4636
www.hsf.net

National Alliance of Black School Educators
1(800) 221-2654
www.nabse.org

National Clearinghouse for English Langugage Acquisition (NCELA)
1(800) 321-6223
www.ncela.gwu.edu

National Native American Families Together Parent Center
1(877) 205-7501
www.nativefamilynetwork.com/

Office of Minority Health Resource Center
1(800) 444-6472 (English/Spanish)
www.omhrc.gov/

Proyecto Visión Hotline
1(866) Empleo 1 (367-5361)
www.proyectovision.net/

Parent Support

Compassionate Friends (grief support after the death of a child)
1(877) 969-0010
www.compassionatefriends.org

MUMS: National Parent to Parent Network
1(877) 336-5333
www.netnet.net/mums/

National Organization of Mothers of Twins Clubs
1(877) 540-2200
www.nomotc.org

Parent Advocacy Coalition for Educational Rights (PACER Center)
1(888) 248-0822
www.pacer.org