Special Needs National Toll-free Numbers & Web Sites (continued)
Special Needs Advocate for Parents (SNAP)
1(888) 310-9889
www.snapinfo.org
Specialized Training of Military Parents (STOMP)
1(800) 5 PARENT (572-7368)
www.stompproject.org
Through the Looking Glass
1(800) 644-2666
www.lookingglass.org
Physical Disabilities
Canine Companions for Independence
1(800) 572-BARK (2275)
www.caninecompanions.org
Christopher and Dana Reeve Paralysis Resource Center
1(800) 539-7309
www.paralysis.org
Courage Center
1(888) 846-8253
www.courage.org
Craniofacial Foundation of America
1(800) 418-3223
www.craniofacialcenter.com
Easter Seals -- National Office
1(800) 221-6827 (V)
1(312) 726-4258 (TTY)
www.easterseals.com
Families of Spinal Muscular Atrophy
1(800) 886-1762
www.fsma.org
Human Growth Foundation
1(800) 451-6434
www.hgfound.org
Muscular Dystrophy Association
1(800) 572-1717
www.mdausa.org/
National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1(877) 226-4267
www.niams.nih.gov
National Library Service for the Blind and Physically Handicapped
1(800) 424-8567
www.loc.gov/nls/
National Limb Loss Information Center
1(888) 267-5669 (English/Spanish)
www.amputee-coalition.org/
National Scoliosis Foundation
1(800) 673-6922
www.scoliosis.org
National Spasmodic Torticollis Association
1(800) 487-8385
www.torticollis.org
National Spinal Cord Injury Hotline
1(800) 962-9629
www.spinalcord.org
Pathways Awareness Foundation
1(800) 955-2445
www.pathwaysawareness.org
Spina Bifida Association of America
1(800) 621-3141 (English/Spanish)
www.sbaa.org
United Cerebral Palsy Associations
1(800) 872-5827
www.ucp.org/
Winners on Wheels (WOW)
1(800) WOW-Talk (969-8255)
www.wowusa.com
Rare Syndromes
Genetic Alliance
1(800) 336-4363
http://geneticalliance.org
Genetic & Rare Diseases Information Center
1(888) 205-2311 (V; English/Spanish)
1(888) 205-3223 (TTY)
http://rarediseases.info.nih.gov/
National Organization for Rare Disorders (NORD)
1(800) 999-6673 (V/TTY)
www.rarediseases.org/
Recreation
Adventures in Movement for the Handicapped
1(800) 332-8210
www.aimforthehandicapped.org/
Best Buddies
1(800) 89 BUDDY 892-8339
www.bestbuddies.org
Girl Scouts of the USA
1(800) 478-7248
www.girlscouts.org
National Center on Physical Activity and Disability
1(800) 900-8086 (V/TTY)
www.ncpad.org
National Lekotek Center's Toy Resource Helpline
1(800) 366-7529 (V)
1(800) 573-4446 (TTY)
www.lekotek.org
North American Riding for the Handicapped, Inc.
1(800) 369-7433
www.narha.org
Rehabilitation
ABLEDATA
1(800) 227-0216 (V/TTY)
www.abledata.com
ADED: Association for Driver Rehabilitation Specialists
1(800) 290-2344
www.driver-ed.org
National Clearinghouse of Rehabilitation Training Materials
1(800) 223-5219
www.nchrtm.okstate.edu
National Rehabilitation Information Center
1(800) 346-2742
www.naric.com
Respiratory Disorders
American Lung Association
1(800) 586-4872
www.lungusa.org
National Heart, Lung, and Blood Institute Information Center
1(800) 575-9355 (English/Spanish)
www.nhlbi.nih.gov
National Jewish Medical & Research Center
1(800) 222-5864
www.njc.org/
Respite Care
National Family Caregivers Association
1(800) 896-3650
www.thefamilycaregiver.org
Rural
Rural Institute on Disabilities
1(800) 732-0323
http://ruralinstitute.umt.edu/
Specific Disabilities
American Association on Mental Retardation
1(800) 424-3688 (outside Metro DC area)
(202) 387-1968 (in DC)
www.aamr.org
Angelman Syndrome Foundation
1(800) 432-6435
www.angelman.org/angel/
The Arc of the United States
1(800) 433-5255
www.thearc.org
Autism Society of America
1(800) 3 AUTISM (328-8476)
www.autism-society.org
Beckwith Wiedemann Support Network
1(800) 837-2976
http://beckwith-wiedemann.org
Brain Injury Association Family Helpline
1(800) 444-6443 (English/Spanish)
www.biausa.org
Center for the Study and Treatment of Usher Syndrome at Boys Town National Research Hospital
1(800) 835-1468 (V/TTY)
www.boystownhospital.org
Charge Syndrome Foundation
1(800) 442-7604
www.chargesyndrome.org
Children and Adults with Attention-Deficit/ Hyperactivity Disorder (CHADD)
1(800) 233-4050
(301) 306-7070 (in Washington, DC metro area)
www.chadd.org
Cornelia de Lange Syndrome Foundation
1(800) 223-8355
(860) 676-8166 (in CT)
www.cdlsusa.org
Family Empowerment Network: Support for Families Affected by FAS/E
1(800) 462-5254 (for families)
www.fammed.wisc.edu/fen
Fetal Alcohol Spectrum Disorders Center
1(866) 786-7327
www.fascenter.samhsa.gov/index.cfm
International Dyslexia Association
1(800) 222-3123
www.interdys.org
International Rett Syndrome Association
1(800) 818-7388
www.rettsyndrome.org
Learning Disabilities Association of America
1(888) 300-6710
www.ldaamerica.org
Little People of America
1(888) 572-2001
www.lpaonline.org
National Center for Learning Disabilities
1(888) 575-7373
www.ncld.org/
National Down Syndrome Congress
1(800) 232-6372
www.ndsccenter.org/
National Down Syndrome Society
1(800) 221-4602 (English/Spanish)
www.ndss.org/
National Fragile X Foundation
1(800) 688-8765
www.fragilex.org
National Gaucher Foundation
1(800) 428-2437
www.gaucherdisease.org/
National Niemann-Pick Disease Foundation
1(877) 287-3672
www.nnpdf.org/
National Organization on Fetal Alcohol Syndrome
1(800) 666-6327
www.nofas.org
National Reye's Syndrome Foundation
1(800) 233-7393
www.reyessyndrome.org
National Stuttering Association
1(800) 937-8888
www.nsastutter.org
Prader-Willi Syndrome Association
1(800) 926-4797
www.pwsausa.org
Spina Bifida Association of America
1(800) 621-3141 (English/Spanish)
www.sbaa.org
Sturge-Weber Foundation
1(800) 627-5482
www.sturge-weber.com/
Stuttering Foundation of America
1(800) 992-9392
www.stuttersfa.org
Support Organization for Trisomy 18, 13, and Related Chromosomal Disorders
1(800) 716-7638
www.trisomy.org
Tuberous Sclerosis Alliance
1(800) 225-6872
www.tsalliance.org/
United Cerebral Palsy Associations
1(800) 872-5827
www.ucp.org/
Williams Syndrome Association
1(800) 806-1871
www.wsf.org/
Also see resources for "Medical/Health Disorders."
Suicide Prevention
American Foundation for Suicide Prevention
1(888) 333-2377
www.afsp.org
National Hopeline Network
1(800) SUICIDE (784-2433)
www.hopeline.com
National Suicide Prevention Lifeline
1(800) 273-TALK (8255)
www.suicidepreventionlifeline.org
Nineline Crisis Hotline
1(800) 999-9999
www.nineline.org
See also "Crisis Intervention" and "Mental Health" resources.
Supplemental Security Income (SSI)
Social Security Administration
1(800) 772-1213 (V; English/Spanish)
1(800) 325-0778 (TTY)
www.ssa.gov/
Trauma
American Trauma Society
1(800) 556-7890
www.amtrauma.org/
Brain Injury Association Family Helpline
1(800) 444-6443
www.biausa.org
National Spinal Cord Injury Association
1(800) 962-9629
www.spinalcord.org
Wishes for Children
Believe in Tomorrow National Children's Foundation
1(800) 933-5470
www.believeintomorrow.org
Sunshine Foundation
1(800) 767-1976
http://sunshinefoundation.org/
Reprinted with the permission of the National Dissemination Center.
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