New York State Disability Resources (continued)

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org
Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
Web: www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

Brain Injury
Judith Avner, Executive Director
Brain Injury Association of New York State
10 Colvin Avenue
Albany, NY 12206
(518) 459-7911; (800) 228-8201 (in NY)
E-mail: info@bianys.org
Web: www.bianys.org

Cerebral Palsy
Susan Constantino, President/CEO
Cerebral Palsy Associations of New York State
330 W. 34th Street, 15th Floor
New York, NY 10001
(212) 947-5770, ext. 201
E-mail: information@cpofnys.org
Web: www.cpofnys.org

Epilepsy
Richard Daly, Executive Director
Epilepsy Foundation of Long Island
506 Stewart Avenue
Garden City, NY 11530
(516) 739-7733
E-mail: rdaly@epil.org
Web: www.efli.org

Intellectual and Developmental Disabilities
Marc Brandt, Executive Director
NYSARC, Inc.
393 Delaware Avenue
Delmar, NY 12054
(518) 439-8311; (800) 724-2094
E-mail: brandtm@nysarc.org
Web: www.nysarc.org

Learning Disabilities
Michael Helman, President
Learning Disabilities Association of New York State
1190 Troy-Schenectady Road, Room 225
Latham, NY 12110
(518) 608-8992
E-mail: statelda@ldanys.org
Web: www.ldanys.org

Mental Health
Glenn Liebman, CEO
Mental Health Association of New York State
194 Washington Avenue, Suite 415
Albany, NY 12210
(518) 434-0439; (800) 766-6177
E-mail: info@mhanys.org
Web: www.mhanys.org

Trix Niernberger, Executive Director
National Alliance for the Mentally Ill - New York State
260 Washington Avenue
Albany, NY 12210-1312
(518) 462-2000; (800) 950-3228
E-mail: info@naminys.org
Web: www.naminys.org

Paige Pierce, Executive Director
Families Together in New York State, Inc.
737 Madison Avenue
Albany, NY 12208
(518) 432-0333; (888) 326-8644 (in NY)
E-mail: info@ftnys.org
Web: www.ftnys.org

Speech, Language, and Hearing
Tricia Savoca, Executive Assistant
New York State Speech-Language-Hearing Association, Inc.
1 Northway Lane
Latham, NY 12110
(518) 786-0947
E-mail: tricia@nysslha.org
Web: www.nysslha.org

Spina Bifida
Karen Wentworth, Executive Director
Spina Bifida Association: Albany/Capital District
123 Saratoga Road
Scotia, NY 12302
(518) 399-9151
E-mail: sbaalbany@verizon.net
Web: www.SBAAlbany.org

Tourette Syndrome
Long Island Chapter
(516) 876-6947
E-mail: LongIslandTSA@aol.com
Web: www.li-tsa.org

Greater Rochester Chapter
(585) 987-5196
E-mail: tsa@touretterochester.org
Web: www.touretterochester.org

New York City Chapter
(646) 202-9683
E-mail: chapter@tsa-nyc.org
Web: www.tsa-nyc.org

Hudson Valley Chapter
(Westchester, Rockland, Orange, Putnam, Dutchess and Ulster counties)
(914) 378-5025
E-mail: info@tsa-nyhv.org
Web: www.tsa-nyhv.org

Greater New York State Chapter
(includes western NYS: Canadian boder to PA border; southern mid-western NYS; Central NYS; Capitol District;
northern NYS to Quebec border. Zip codes 12017-14895)
(716) 839-4430
E-mail: conners@roadrunner.com
Web: www.tsa-gnys.org

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Paul J. Shew, Executive Director
The Advocacy Center
590 South Avenue
Rochester, NY 14620
(585) 546-1700; (800) 650-4967 (in NY)
Web: www.advocacycenter.com

Kim Sweet, Executive Director
Advocates for Children of New York (New York City)
151 W. 30th Street, 5th Floor
New York, NY 10001
(212) 947-9779
E-mail: info@advocatesforchildren.org
Web: www.advocatesforchildren.org
Web: www.insideschools.org

Rachel Howard, Executive Director
Resources for Children with Special Needs, Inc.
116 E. 16th Street, 5th Floor
New York, NY 10003
(212) 677-4650
E-mail: information.services@resourcesnyc.org
Web: www.resourcesnyc.org
Database on the Web: www.resourcesnycdatabase.org

Myrta Cuadra-Lash, Executive Director
Sinergia/Metropolitan Parent Center
134 W. 29th Street, 4th Floor
New York, NY 10001
(212) 643-2840; (866) 867-9665
E-mail: information@sinergiany.org
Web: www.sinergiany.org

Community Parent Resource Center
(serving Brooklyn, NY)
Lourdes Rivera-Putz, Program Director
United We Stand of New York
91 Harrison Avenue
Brooklyn, NY 11206
(718) 302-4313/4314
E-mail: uwsofny@aol.com
Web: www.taalliance.org/ptis/uws/

Partners in Policymaking
Joyce Steel, Program Coordinator
New York State Partners in Policymaking
590 South Avenue
Rochester, NY 14620
(585) 546-1700, ext. 234
E-mail: steel@advocacycenter.com
Web: www.advocacycenter.com

Parent-To-Parent
Janice Fitzgerald, Executive Director
Parent to Parent of NYS
P.O. Box 1296
Tupper Lake, NY 12986
(518) 359-3006; (866) 727-6970
E-mail: p2pnys@adelphia.net
Web: www.parenttoparentnys.org

Parent Teacher Association (PTA)
Maria DeWald, President
New York State Congress of Parents and Teachers, Inc.
One Wembley Court
Albany, NY 12205-3830
(518) 452-8808; (877) 5NYSPTA
E-mail: office@nyspta.org
Web: www.nyspta.org

Other Parent Organization
(Information about resources serving children birth to 5 and their families)
Elaine Gervais, Associate in Special Education
Early Childhood Direction Centers
Office of Vocational and Educational Services for Individuals with Disabilities (VESID)
One Commerce Plaza, Room 1623
99 Washington Avenue
Albany, NY 12234
(518) 486-7462
E-mail: egervais@mail.nysed.gov
Web: www.vesid.nysed.gov

(Serving Otsego, Chenango, Delaware, Broome, Tioga, and Tompkins counties)
Pam Larsen, Director
The Family Resource Network, Inc
46 Oneida Street
Oneonta, New York 13820
(607) 432-0001; (800) 305-8814
E-mail: familyrn@dmcom.net
Web: www.familyrn.org