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North Dakota State Disability Resources (page 2)

— National Dissemination Center for Children With Disabilities
Updated on Dec 19, 2011

Disability-Specific Organizations

Attention Deficit Disorder To identify an ADD group in your state or locality, contact either: Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150 Landover, MD 20785 (301) 306-7070 (800) 233-4050 (Voice mail to request information packet) Web: www.chadd.org

Attention Deficit Disorder Association (ADDA) P.O. Box 543 Pottstown, PA 19464-0543 (484) 945-2101 Web: www.add.org

Autism To identify an autism group in your state, contact: Autism Society of America 7910 Woodmont Avenue, Suite 300 Bethesda, MD 20814 (301) 657-0881; (800) 3-AUTISM Web: www.autism-society.org Blind/Visual Impairments Jaclyn Packer, Ph.D., Director of Information Center American Foundation for the Blind 11 Penn Plaza, Suite 300 New York, NY 10001 (212) 502-7600; (800) 232-5463 E-mail: afbinfo@afb.net Web: www.afb.org Brain Injury Mary Simonson, Executive Director Brain Injury Association of North Dakota Open Door Center 209 2nd Street S.E. Valley City, ND 58072 (701) 845-1124 Children with Special Health Care Needs Donene Feist, Director Family Voices of North Dakota, Inc. 312 2nd Avenue P.O. Box 163 Edgeley, ND 58433 (701) 493-2634; (888) 522-9654 E-mail: fvnd@drtel.net Web: www.fvnd.org Epilepsy Bennie Loro, Executive Director Epilepsy Foundation of Minnesota 1600 University Avenue, Suite 300 St. Paul, MN 55104 (651) 287-2300; (800) 779-0777 E-mail: info@efmn.org Web: www.efmn.org Intellectual and Developmental Disabilities Dianne Sheppard, CEO The Arc, Upper Valley The Arc of North Dakota 2500 DeMers Avenue P.O. Box 12420 Grand Forks, ND 58208-2420 (701) 772-6191 E-mail: thearc@arcuv.com Web: www.thearcuppervalley.org Learning Disabilities Mary Ann M. Anderson, Co-President Learning Disabilities Association of North Dakota 409 3rd Avenue, N.W. Mandan, ND 58554 (701) 663-1949 Henri Heidt, Co-President Learning Disabilities Association of North Dakota 7840 Arcata Drive Bismarck, ND 58503-6333 (701) 222-1490 Mental Health Susan Rae Helgeland, Executive Director Mental Health America of North Dakota 523 N. 4th Street P.O. Box 4106 Bismarck, ND 58502-4106 (701) 391-8824 E-mail: shelgeland@mhand.org Web: www.mhand.org Speech, Language, and Hearing Linda Madsen, President North Dakota Speech-Language-Hearing Association P.O. Box 12775 Grand Forks, ND 58208-2775 (701) 780-2439 E-mail: lhoff@altru.org Web: www.minotstateu.edu/ndslha/ Tourette Syndrome Tourette Syndrome Association, Inc. 42-40 Bell Boulevard Bayside, NY 11361-2820 (718) 224-2999 E-mail: ts@tsa-usa.org Web: www.tsa-usa.org

Organizations Especially for Parents

Parent Training and Information Center (PTI) Jim Carter, Director Pathfinder Family Center 1600 2nd Avenue, S.W., Suite 30 Minot, ND 58701-3459 (701) 837-7500; (701) 837-7501 (TTY) (800) 245-5840 (in ND) E-mail: ndpath01@srt.com Web: www.ndpti.com Parent-To-Parent Pat Conway, Ph.D., LCSW, Principal Investigator/Project Director Family to Family Support Network University of North Dakota School of Medicine and Health Sciences Center for Rural Health P.O. Box 9037, Room 4107 Grand Forks, ND 58202-9037 (701) 777-2359; (888) 434-7436 E-mail: NDF2F@medicine.nodak.edu Web: http://medicine.nodak.edu/crh Partners in Policymaking Joyce Smith, Community Advocate/Partners in Policymaking Program Coordinator The Arc of Bismarck 1211 Park Avenue Bismarck, ND 58504 (701) 258-7949; (888) 258-7949 (in ND) 711 TDD Relay E-mail: joyce@apsimail.com Web: www.arcofbismarck.org/partners

Other Disability Organizations

Gordon Hauge, Chief Executive Officer Easter Seals Goodwill of North Dakota, Inc. 211 Collins Avenue P.O. Box 1206 Mandan, ND 58554 (701) 663-6828; (800) 247-0698 E-mail: ghauge@esgwnd.org Independent Living To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston, TX 77019 (713) 520-0232 (V); (713) 520-5136 (TTY) E-mail: ilru@ilru.org Web: www.ilru.org To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC 20036 (202) 207-0334 (V); (202) 207-0340 (TTY) E-mail: ncil@ncil.org Web: www.ncil.org

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