North Dakota State Disability Resources (continued)

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
Web: www.add.org

Autism
To identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

Brain Injury
Mary Simonson, Executive Director
Brain Injury Association of North Dakota
Open Door Center
209 2nd Street S.E.
Valley City, ND 58072
(701) 845-1124

Children with Special Health Care Needs
Donene Feist, Director
Family Voices of North Dakota, Inc.
312 2nd Avenue
P.O. Box 163
Edgeley, ND 58433
(701) 493-2634; (888) 522-9654
E-mail: fvnd@drtel.net
Web: www.fvnd.org

Epilepsy
Bennie Loro, Executive Director
Epilepsy Foundation of Minnesota
1600 University Avenue, Suite 300
St. Paul, MN 55104
(651) 287-2300; (800) 779-0777
E-mail: info@efmn.org
Web: www.efmn.org

Intellectual and Developmental Disabilities
Dianne Sheppard, CEO
The Arc, Upper Valley
The Arc of North Dakota
2500 DeMers Avenue
P.O. Box 12420
Grand Forks, ND 58208-2420
(701) 772-6191
E-mail: thearc@arcuv.com
Web: www.thearcuppervalley.org

Learning Disabilities
Mary Ann M. Anderson, Co-President
Learning Disabilities Association of North Dakota
409 3rd Avenue, N.W.
Mandan, ND 58554
(701) 663-1949

Henri Heidt, Co-President
Learning Disabilities Association of North Dakota
7840 Arcata Drive
Bismarck, ND 58503-6333
(701) 222-1490

Mental Health
Susan Rae Helgeland, Executive Director
Mental Health America of North Dakota
523 N. 4th Street
P.O. Box 4106
Bismarck, ND 58502-4106
(701) 391-8824
E-mail: shelgeland@mhand.org
Web: www.mhand.org

Speech, Language, and Hearing
Linda Madsen, President
North Dakota Speech-Language-Hearing Association
P.O. Box 12775
Grand Forks, ND 58208-2775
(701) 780-2439
E-mail: lhoff@altru.org
Web: www.minotstateu.edu/ndslha/

Tourette Syndrome
Tourette Syndrome Association, Inc.
42-40 Bell Boulevard
Bayside, NY 11361-2820
(718) 224-2999
E-mail: ts@tsa-usa.org
Web: www.tsa-usa.org

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Jim Carter, Director
Pathfinder Family Center
1600 2nd Avenue, S.W., Suite 30
Minot, ND 58701-3459
(701) 837-7500; (701) 837-7501 (TTY)
(800) 245-5840 (in ND)
E-mail: ndpath01@srt.com
Web: www.ndpti.com

Parent-To-Parent
Pat Conway, Ph.D., LCSW, Principal Investigator/Project Director
Family to Family Support Network
University of North Dakota School of Medicine and Health Sciences
Center for Rural Health
P.O. Box 9037, Room 4107
Grand Forks, ND 58202-9037
(701) 777-2359; (888) 434-7436
E-mail: NDF2F@medicine.nodak.edu
Web: http://medicine.nodak.edu/crh

Partners in Policymaking
Joyce Smith, Community Advocate/Partners in Policymaking Program Coordinator
The Arc of Bismarck
1211 Park Avenue
Bismarck, ND 58504
(701) 258-7949; (888) 258-7949 (in ND)
711 TDD Relay
E-mail: joyce@apsimail.com
Web: www.arcofbismarck.org/partners