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Pennsylvania State Disability Resources (continued)

Source: National Dissemination Center for Children With Disabilities
Topics: Pennsylvania

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
E-mail: mail@add.org
Web: www.add.org

Autism
Karl Smelser, Director
Marie Mambuca, Family Support Coordinator
ABOARD (Advisory Board on Autism and Related Disorders)
35 Wilson Street, Suite 100
Pittsburgh, PA 15223
(412) 781-4116; (800) 827-9385
E-mail: info@aboard.org
Web: www.aboard.org

Cindy Waeltermann, Director
AutismLink
376 Wagon Wheel Trail
Wexford, PA 15090
(412) 364-1886
E-mail: info@autismlink.com
Web: www.autismlink.com

Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

James Antonacci, President
National Federation of the Blind of Pennsylvania
42 S. 15th Street, Suite 222
Philadelphia, PA 19102
(215) 988-0888
E-mail: nfbofpa@att.net
Web: www.nfbp.org

Cerebral Palsy
Joan W. Martin, Executive Director
United Cerebral Palsy of Pennsylvania
908 N. Second Street
Harrisburg, PA 17103
(717) 441-6049, ext. 26
E-mail: info@ucpofpa.org
Web: www.ucpofpa.org

Epilepsy
Judy Painter, Executive Director
Epilepsy Foundation Western/Central Pennsylvania
Lifeswork
1323 Forbes Avenue, Suite 102
Pittsburgh, PA 15219
(412) 261-5880; (800) 361-5885
E-mail: pbeem@efwp.org
Web: www.efwp.org

Jeanette K. Chelius, Executive Director
Epilepsy Foundation of Eastern Pennsylvania
919 Walnut Street, Suite 700
Philadelphia, PA 19107-5237
(215) 629-5003; (800) 887-7165 (in PA)
E-mail: efepa@efepa.org
Web: www.efepa.org

Intellectual and Developmental Disabilities
Stephen H. Suroviec, Executive Director
The Arc of Pennsylvania
101 S. Second Street, Suite 8, Executive House
Harrisburg, PA 17101
(717) 234-2621; (800) 692-7258
E-mail: ssuroviec@thearcpa.org
Web: www.thearcpa.org

Learning Disabilities
Debbie Rodes, President
Learning Disabilities Association of Pennsylvania
Toomey Building
P.O. Box 208
Uwchland, PA 19480
(610) 458-8193
Web: www.ldapa.org

Mental Health
James W. Jordan, Jr., Executive Director
NAMI Pennsylvania
2149 N. Second Street
Harrisburg, PA 17110
(717) 238-1514; (800) 223-0500
E-mail: nami-pa@nami.org
Web: http://namipa.nami.org

Catherine Panzarella, Director
Family & Youth Support & Advocacy Division
Mental Health Association of Southeastern Pennsylvania
1211 Chestnut Street, 11th Floor
Philadelphia, PA 19107
(215) 751-1800, ext. 513; (800) 688-4226, ext. 513
E-mail: pin@pinofpa.org
Web: www.pinofpa.org

Speech, Language, and Hearing
Diane Yenerall, Business Manager
Pennsylvania Speech-Language-Hearing Association
800 Perry Highway, Suite 3
Pittsburgh, PA 15229-1128
(412) 366-9858
E-mail: psha@psha.org
Web: www.psha.org

Spina Bifida
Patricia Fulvio, Executive Director
Spina Bifida Association of Greater Pennsylvania
215 E. State Street, Suite D
Quarryville, PA 17566-1242
(717) 786-9280; (888) 770-7272 (In PA)
E-mail: SBAofPA@aol.com
Web: www.geocities.com/SBAofgPA

Tourette Syndrome
Sherrie Sponseller, Administrator/Advocate
Pennsylvania Tourette Syndrome Association
132 W. Middle Street
Gettysburg, PA 17325
(717) 337-1134; (800) 990-3300 (in PA)
E-mail: sherrie@patsainc.org
Web: www.patsainc.org

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Parent Education Network
2107 Industrial Highway
York, PA 17402
(717) 600-0100; (800) 522-5827 (V/TTY) (In PA);
(800) 441-5028 (Spanish)
E-mail: pen@parentednet.org
Web: www.parentednet.org

Elisabeth Healey, Director
Parent and Education Advocacy Leadership (PEAL) Center
1119 Penn Avenue, Suite 400
Pittsburgh, PA 15222-4205
(412) 281-4404; (866) 950-1040
(412) 281-4409 (TTY)
Email: admin@pealcenter.org
Web: www.pealcenter.org

Community Parent Resource Center
(Serving American Street Empowerment Zone and providing intense training sessions to parents of children with disabilities in Philadelphia)
Luz Hernandez, Program Director
Hispanos Unidos para Ninos Excepcionales
(Philadelphia HUNE, Inc.)
202 W. Cecil B. Moore Avenue
Philadelphia, PA 19122
(215) 425-6203
E-mail: huneinc@aol.com
Web: http://huneinc.org

(Serving rural Northwest Pennsylvania)
Gail Walker, Director
The Mentor Parent Program, Inc.
P.O. Box 47
Pittsfield, PA 16340
(814) 563-3470; (888) 447-1431 (in PA)
E-mail: gwmpp@verizon.net
E-mail: mentorparentprogram@verizon.net
Web: www.mentorparent.org

Parent-To-Parent
Fiona Patrick, Program Director
Parent to Parent of Pennsylvania
6340 Flank Drive, Suite 600
Harrisburg, PA 17112-2764
(717) 540-4722; (888) 727-2706 (in PA)
E-mail: info@parenttoparent.org
Web: www.parenttoparent.org

Partners in Policymaking
Diane N. Bryen, Ph.D., Executive Director
Institute on Disabilities/University Center for Excellence
Temple University
University Services Building, Room 610
1601 N. Broad Street
Philadelphia, PA 19122
(215) 204-9395
E-mail: dianeb@temple.edu
Web: http://disabilities.temple.edu

Parent Teacher Association (PTA)
Caroline Allen, President
Pennsylvania Congress of Parents and Teachers, Inc.
4804 Derry Street
Harrisburg, PA 17111
(717) 564-8985
E-mail: info@papta.org
Web: www.papta.org

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