Utah State Disability Resources (continued)

Disability-Specific Organizations

Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org

Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464-0543
(484) 945-2101
Web: www.add.org

Autism
Helen Post, Executive Director
Autism Information Resources at the Utah Parent Center
2290 East 4500 South, Suite 110
Salt Lake City, UT 84117
(801) 272-1051; (800) 468-1160 (V/TTY)
Web: www.utahparentcenter.org

Blind/Visual Impairments
Jaclyn Packer, Ph.D., Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (800) 232-5463
E-mail: afbinfo@afb.net
Web: www.afb.org

Brain Injury
Ron Roskos, Executive Director
Brain Injury Association of Utah, Inc.
1800 South West Temple, Suite 203
Salt Lake City, UT 84115
(801) 484-2240; (800) 281-8442 (in UT)
E-mail: biau@sisna.com
E-mail: ron48sr@sisna.com
Web: www.biau.org

Cerebral Palsy
Shelly Petty, Executive Director/CEO
Cerebral Palsy of Utah
Foundations for Independence
3550 South 700 West
Salt Lake City, UT 84119
(801) 266-1805
E-mail: shelly@ffiutah.org
Web: www.ffiutah.org

Epilepsy
Epilepsy Association of Utah
1995 West 9000 South Level B
West Jordan, UT 84088
(801) 566-5949
E-mail: info@epilepsyut.org
Web: www.epilepsyut.org

Intellectual and Developmental Disabilities
Douglas L. Hathaway, Executive Director
The Arc of Utah
155 South 300 West, Suite 201
Salt Lake City, UT 84101
(801) 364-5060; (800) 371-5060 (In UT)
E-mail: execdirector@arcutah.org
Web: www.arcutah.org

Mental Health
Dr. Mack Gift, Executive Director
Mental Health Association in Utah
1800 South West Temple, Suite 501
Salt Lake City, UT 84115
(801) 596-3705
E-mail: mhaut@xmission.com
Web: www.mhaut.org

Lori Cerar, Executive Director
Allies with Families
450 East 1000 North, Suite 311
North Salt Lake, UT 84054
(801) 433-2595; (877) 477-0764
E-mail: allies@allieswithfamilies.org
Web: www.allieswithfamilies.org

Sherri Wittwer, Executive Director
NAMI-Utah
450 South 900 East
Salt Lake City, UT 84102
(801) 323-9900
E-mail: sherriwittwer@msn.com
Web: www.namiut.org

Prader-Willi Syndrome
Lisa Thornton, President
Prader-Willi Syndrome Association of Utah
2652 E. Nottingham Way
Salt Lake City, UT 84108
(801) 582-0998
Web: www.pwsausa.org/ut

Special Health Care Needs
Gina Pola-Money, Director
Family Voices of Utah
Family to Family Health Information & Education Center
44 N. Medical Drive
P.O. Box 144650
Salt Lake City, Utah 84114-4650
(801) 584-8236; (800) 829-8200
(801) 808-4220 (cell)
E-mail: utahfamilyvoices@juno.com
Web: www.familyvoices.org
Web: www.medhomeportal.org

Speech, Language, and Hearing
Sheryl Spriet, President
Utah Speech-Language-Hearing Association
1379 31st Street
Ogden, UT 84403
(801) 402-5462
E-mail: president@ushaonline.net
E-mail: syspriet@ihc.com
Web: www.ushaonline.net/

Organizations Especially for Parents

Parent Training and Information Center (PTI)
Helen Post, Executive Director
Jennie Gibson, Associate Director
Utah Parent Center
2290 East 4500 South, Suite 110
Salt Lake City, UT 84117
(801) 272-1051 (V/TTY); (800) 468-1160 (In UT)
E-mail: upcinfo@utahparentcenter.org
Web: www.utahparentcenter.org

Parent Teacher Association (PTA)
Marilyn Simister, President
Utah Congress of Parents and Teachers
5192 S. Greenpine Drive
Salt Lake City, UT 84123
(801) 261-3100; (866) 782-8824
E-mail: kids@utahpta.org
Web: www.utahpta.org

Other Parent Organization
Phoebe Blackham, Executive Director
State Family Council of Utah
Alpine, UT 84004
(801) 756-3995