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Child Mental Health Resources (page 7)

State: Kansas State Department of Education

Tourette's Disorder

Tourette's disorder is a neurological disorder that has dramatic consequences for some 200,000 Americans and affects an approximate additional 2 million to some degree. Boys identified with Tourette's disorder outnumber girls 3 to 1; the disorder affects all races and ethnic groups. Researchers have traced the condition to a single abnormal gene that predisposes the individual to abnormal production or function of dopamine and other neurotransmitter in the brain. Although Tourette's disorder is classified as a mental health disorder, it is usually treated by a neurologist as well as a psychiatrist.

The disorder is still poorly recognized by health professionals. About 80 percent of people with Tourette's disorder diagnose themselves or are diagnosed by family members after learning about the disorder in the media. Many people have symptoms mild enough that they never seek help; many others find their symptoms subside after they reach adulthood. Indicators of Tourette's disorder include:

  • The presence of multiple motor and vocal tics, although not necessarily simultaneously
  • Multiple bouts of tics every day or intermittently for more than a year
  • Changes in the frequency, number, and kind of tics and in their severity
  • Marked distress or significant impairment in social, occupational, or other areas of functioning, especially under stressful conditions
  • Onset before age 18

An estimated 25 percent of students in the U. S. have a tic at some time in their life. Not all students with tics have Tourette's disorder, although they may have a related "tic disorder."

Tics may be simple (for example, eye blinking, head jerking, coughing, snorting) or complex (for example, jumping, swinging objects, mimicking other people's gestures or speech, rapid repetitions of a word or phrase). In fact, the range of tics exhibited by people with Tourette's disorder is so broad that family members, teachers, and friends may find it hard to believe that these actions or vocalizations are not deliberate.

Like someone compelled to cough or sneeze, people with Tourette's disorder may feel an irresistible urge to carry out their tics. Others may not be aware of the fact they are ticking. Some people can suppress their tics for hours at a time, but this leads to stronger outbursts of tics later on. Often, children "save up" their tics during school hours and release them when they return home and feel safe from harassment or teasing.

Somewhere between 50 to 70 percent of students with Tourette's disorder have related learning disabilities, attention-deficit/hyperactivity disorder (AD/HD), obsessive-compulsive disorder or difficulties with impulse control. Sensory integration problems may explain some behaviors. Depression and anxiety may underlie more visible symptoms.

Mental Health Websites

Helping America's Youth (Go to "Community Guide". Then "Search for programs to help youth")Overview of all programs for prevention and intervention for social/mental health. You can search by key word, by Protective or risk factor. Also on the site read about how the programs were rated for "scientifically demonstrated"

National Association of School Psychologists (Go to "Educators" for mental health references: PDF of Special Education NEXUS briefing 3-15-2007) Resources for educators related to mental health facts and interventions

National Association of Mental Illness (Go to "Inform yourself", and then "About Mental Illness", scroll down to the bottom of the page "By Illness"

Coalition of Evidence Based Policy (Social Programs: Scroll down to "Interventions" scroll down to "Mental Health". Also, Scroll down "K-12". Also, Scroll down "Early Childhood")Group Cognitive Behavioral Therapy (Depression prevention program for youth at elevated risk of serious depression)

Promising Practice Network on Children, Families, & Communities ("Programs")Overview of programs/practices. There are links to find by outcomes, or indicators, topic, evidence level

Center for Effective Collaboration & Practice (This is a link for "briefs" for families on best practice. Also "Mental Health") Overview of Best Practices. Second link has links to mental health topics. Site is still under development. (also has mini-webs)

Association for Children's Mental Health, For Families (pdf 2004) Evidence Based Practice: Beliefs, Definitions, and Suggestions.

United States Department of Health & Services - Substance Abuse and Mental Health Services Administration (Go to "Resources", then "Mental Health Locator", click on "KS"):

Directory for locating mental health services in each state. In addition a number of resources and interventions.

National Association of Social Workers (NASW)-"One Teen at a Time Campaign" (Go to Behavioral health then to Adolescent health)-Includes resources and tools for professionals, parents and teens in following areas; school bullying, social skills, self esteem, dating/relationships, diversity

Social and Rehabilitation Services Health Care Policy on Mental Health -State agency -Examples of information that can be found are resources for adults, children, Governors Mental Health Services Planning Council, Mental Health provider information, State hospitals

Association of Community Mental Health Centers of Kansas, Inc. - Provides information on Community Mental Health Centers, Policy, and Mental Health Information

Keys for Networking Provide support and information to families of children and adolescents with serious emotional , behavioral, or mental disorders.

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