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Family Systems (continued)

by G. Olsen|M.L. Fuller
Source: Pearson Allyn Bacon Prentice Hall
Topics: Special Needs, Parenting, What to Expect From Your Child

Child-Peer Relations

Parents are constantly seeking opportunities for children with disabilities to actively engage in typical early childhood experiences with their peers (Boswell & Schuffner, 1990; McLean & Hanline, 1990; Ruder, 1993; Statum, 1995). Also, critical to these children's development is the growth they continually experience from interactions as members of their own families (Frey, Fewell, Vadasy, & Greenberg, 1989; Pearl, 1993; Statum, 1995). Thus, an additional difficulty is the family's effort to continually locate positive peer interactions so their exceptional child has an opportunity to enhance his or her learning experiences (Bailey & Bricker, 1984; Guralnick, 1990; McLean & Hanline, 1990; Ruder, 1993).

Child Care

Finding an appropriate child-care program for any family often is a trying event and even more stressful to families attempting to locate a program that will accept a child with a disability (Fewell, 1986). Quite frankly, child-care providers are not customarily informed on how to work with young children with disabilities and thus are reluctant· to accept responsibility for such children. They are, however, increasingly being asked to care for these children.

Seeking Services

Families seek the best services to provide for their child. Consequently, their homes are often like New York's Grand Central Station in trying to schedule various needed services. Furthermore, opening one's home to the numerous specialists arriving to provide services to their child and family is an intrusion on family privacy with which other families do not have to contend (Hanson, Lynch, & Wayman, 1990; Pearl, 1993). Nevertheless, these families are frequently required to carry out the programs prescribed for their child if they want to ensure their child's progress.

Early childhood special education interventionists attempt to work with families and their children with disabilities in a caring, sensitive, and supportive manner (Fewell, 1986; Pearl, 1993). Obviously, the services provided must be flexible and responsive to the diversity of family needs and resources (DeGangi, Wietlisbach, Possison, Stein, & Royeen, 1994; Hanson et al., 1990).

In addition to handling everyday life stressors, families learn how best to provide for the various needs of their child. Therefore, early intervention services must strive to be family friendly, family focused, and family centered. Moreover, services need to be provided to families in the various settings that each family requires, such as home, day care, or community.

Values

Cultural and religious values heavily influence a family's structure as well as their views of disabilities (DeGangi et al., 1994; Hanson et al., 1990; Howard et al., 2001). Families will differ by cultural, economic, and religious influences, as well as by membership and structure of the family itself (Hanson et al., 1990; Howard et al., 2001). Such values can impact the effectiveness of the family's acceptance and willingness to implement intervention strategies. Therefore, professionals must be respectful of families' value systems and their services flexible enough to be in accordance with differing family value systems and cultures (De Gangi et al., 1994; Hanson et al., 1990; Linan-Thompson & Jean, 1997).

Extended Family

Another important factor is the extended family, which is often a wonderful resource for providing that additional assistance needed in dealing with their child. An extended family can include grandparents, aunts, uncles, cousins, neighbors, and close friends who have joined the family circle. These members frequently provide the continual encouragement, respite relief, moral support, comfort, and unconditional understanding needed by the parents and other family members (Fewell, 1986; Gallagher, Cross, & Scharfman, 1981; Long et al., 1993; Pearl, 1993).

Support Groups

Parents of children with disabilities often need additional support other than that provided by professionals (Long et al., 1993; Meyer, 1993). Consequently, there is a growing network of parent support groups across the nation. Networking is a process linking parents interested in talking to other parents who have coped with similar situations—felt anguish, needed relief, and paved the road for tomorrow (Frey et aI., 1989; Gibbs, 1993; Grossman, 1972). These networks of extended support allow family members to grow through personal shared experiences.

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