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Other Forms of Parent Involvement (page 3)

By W.L. Heward
Pearson Allyn Bacon Prentice Hall
Updated on Jul 20, 2010

Parent to Parent Groups

Parent to Parent programs help parents of children with special needs become reliable allies for one another (Santelli, Poyadue, & Young, 2001). The programs give parents of children with disabilities the opportunity to receive support from a veteran parent who has experienced or still is experiencing similar circumstances and challenges. It carefully matches trained and experienced parents in a one-to-one relationship with parents who have been newly referred to the program. “Because the two parents share so many common disability and family experiences, an immediacy of understanding is typically present in the match. This makes the informational and emotional support from the veteran parents all the more meaningful” (Santelli et al., 1997, p. 74). The first Parent to Parent program, called Pilot Parents, was formed in 1971 by the parent of a young child with Down syndrome in Omaha, Nebraska. Today, there are more than 550 active local Parent to Parent groups and 29 statewide programs.

Parents As Research Partners

Researchers in special education are concerned about the social validity of their studies (Schwartz & Baer, 1991). Are they investigating socially significant variables? Are the methods used to change student performance acceptable? Did the changes observed make any real difference in the child’s life? Who better than parents can identify meaningful outcomes, observe and measure performance in the home and community, and let researchers know if their ideas and findings have any real validity?

A model research-partnership program conducted at the Fred S. Keller School in New York embraces parents as full partners in conducting action research with their children. “The parents are the scientists, and they conduct empirical studies under the supervision of the schools’ parent educators” (Donley & Williams, 1997, p. 46). Parents are assisted in the development of their research projects by their child’s teachers, other parents, and a paid parent educator. The experience culminates with a poster session presentation at the end of the school year during which the parent-scientists display the academic, social, and affective gains achieved by their children. Donley and Williams recognize that some school programs do not have the resources to hire a parent educator. They provide several suggestions for schools with more limited resources to approximate their model.

Kay and Fitzgerald (1997) believe that collaborative action research projects foster closer bonds between teachers and parents and provide parents with the satisfaction of knowing what works with their child and why. They recommend that parents participate in action research by helping brainstorm research questions, collect performance data on their children, and share the outcomes with other parents and teachers. Kay and Fitzgerald recognize that involving parents in home-based research experiences can, at times, be overwhelming; but they view the benefits as far outweighing the disadvantages. Whether the parents participate as paid or volunteer members of a research team, they are involved in collecting performance data on their children, talking about these data on a regular basis with other parents, and displaying them in an informal and supportive environment at the end of the year (Donley & Williams, 1997).

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